MitoAction

Thank you to everyone who made the 2025 International Metabolic Conference one to remember! We had an amazing weekend filled with incredible clinician presentations, fun, a family kickball game, making connections with our community, and so much more.mitoaction.org/events/interna…

Registration opens in 30 minutes! We can't wait to see you all soon at the Detroit Country Day School. mitoaction.org/events/interna…

Join us at 12pm EST for our Weekly Support Call! Click the link or visit our website to register. mitoaction.org/mitoaction-eve…

We have just a few more weeks until the 2025 Falmouth Road Race. Help our Team MitoAction runners reach their fundraising goals to raise money and spread awareness for the mitochondrial disease community. Your support means the world to Team MitoAction! raceroster.com/events/2025/99…

IMC 2025 starts tomorrow! We can’t wait to see you at the Detroit Country Day School tomorrow to kick off an amazing weekend. Registration will open at 12:30pm EST in the PAC lobby and the opening session will begin at 2pm. Get excited for a fun weekend! mitoaction.org/events/interna…

Join us tonight for our July Wondering Wednesdays: Ask the Genetic Counselor with Devin Shuman. Click the link or visit our website to register and join us at 8pm EST! mitoaction.org/mitoaction-eve…

Join us tonight for our Men's Support Call! Register to join this special place for the men in our mito community to connect, share stories, and support one another on their own unique journeys with mito. Click the link or visit our website to register. mitoaction.org/mitoaction-eve…

It is finally the week of the International Metabolic Conference! We can't wait to see you this Friday in Detoit. If you’re joining us this weekend, share this post to get everyone excited for a weekend of learning, connecting, and fun! mitoaction.org/events/interna…

Congratulations to Dr. Jerry Vockley on being awarded the Medical and Scientific Trailblazer Award at the Rare Impact Awards. Dr. Vockley is a vital member of our mito and FAOD communities.givetochildrens.org/whats-happenin…

Take a look at our support program schedule for this week! To conclude this week, we kick off our 2025 International Metabolic Conference on Friday, July 25th! Register for any of these programs and learn more about our conference on our website today. mitoaction.org/calendar/

Take a look at this interesting article from BBC on eliminating hereditary disease for newborn babies. UK scientists have been experimenting with combining the DNA from 3 people to prevent fatal genetic conditions. Click the link to read the full article! bbc.com/news/articles/…

Our July Mito Matters Newsletter is out now! If you would like to be added to our newsletter mailing list for our future monthly newsletters, click the link or visit our website! mitoaction.org/newsletters/ne…

Join us for our Men’s Support Call on Tuesday at 6pm EST! If you are a patient, parent, caregiver, friend, or loved one, feel free to join us for this special support call just for men in the mito community! Click the link or visit our website to register. mitoaction.org/mitoaction-eve…

We are just 1 week away from our 2025 International Metabolic Conference! We can’t wait to see you all in Detroit for a weekend of learning, bonding, and growing with our wonderful FAOD community. mitoaction.org/events/interna…

Join us at 12 pm EST for our Weekly Support Call! Click the link or visit our website to register and join us soon! mitoaction.org/mitoaction-eve…

We are just 1 month away from the 2025 Falmouth Road Race! We need your support to help us reach our team fundraising goal, every dollar helps us continue supporting our mito community. Let’s make this last month the strongest one yet! raceroster.com/events/2025/99…

Did you miss our MitoArtisan’s Playtime course last Sunday? Click the link or head over to our website to watch artist Joey Hernandez’s presentation on how mito artists can create art with low vision. Visit our website to learn more! mitoaction.org/resources/mito…

Tune in to the latest episode of the Energy in Action Podcast! Marcy is joined by Cristol Barrett O’Loughlin for an honest, uplifting conversation about what it really takes to care for someone who is living with a lifelong, often‑progressive illness. mitoaction.org/resources/ener…

Take a moment to read MitoChampion Josie VanLonden’s story to get a unique perspective on the FDA delays of elamipretide. Josie does an AMAZING job at sharing her story and expounding on how the delays of this drug is cause for concern for our community! kevinmd.com/2025/07/fda-de…

Are you on our monthly newsletter mailing list? Click the link or visit our website to sign up to receive our Mito Matters Newsletter this Saturday, July 19th! mitoaction.org/newsletters/ne…