MPN Voice
@MPNVoice
MPN Voice supports people with rare blood cancers called myeloproliferative neoplasms (MPNs). We offer information, give emotional support and fund research.
REGISTRATION NOW OPEN! Friday 7 November 2025, 1 – 5 pm (arrival/registration from 1 – 1.30 pm with complimentary buffet lunch) Venue Victoria Hall, Norfolk Street, Sheffield, S1 2JB THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE This forum, with presentations from the haematology…
REGISTRATION NOW OPEN! Friday 3 October 2025, 1 – 5 pm (arrival/registration from 1 – 1.30 pm with complimentary buffet lunch) Venue The Royal Station Hotel, Neville Street, Newcastle-upon-Tyne, NE1 5DH THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE This forum is an…
REGISTRATION NOW OPEN! Friday 19 September 2025, 1 – 5 pm (arrival/registration from 1 – 1.30 pm with complimentary buffet lunch) Venue Crowne Plaza Hotel Chester, Trinity Street, Chester, CH1 2BD THIS IS AN IN-PERSON FORUM NOT VIRTUAL/ONLINE This forum, with presentations…
REGISTRATION NOW OPEN! Wednesday 3 September 2025, 10.30 am – 4 pm (arrival/registration from 10.30 – 11 am with complimentary refreshments) Venue UHI House, Old Perth Road, Inverness, IV2 3JH. (located on the Raigmore Hospital campus) THIS IS AN IN-PERSON FORUM NOT…
MHRA approves pharmaand GmbH’s Pegasys® (peginterferon alfa-2a) as a treatment for eligible patients with the myeloproliferative neoplasms (MPNs) blood cancers polycythaemia vera (PV) and essential thrombocythaemia (ET). 💙First MHRA approval of an interferon alfa as a…
Raising Awareness — One Step at a Time 🌟 From bake sales and treks to abseils and heartfelt patient stories — your voices have echoed across the last year, and this image says it all. As September approaches, we’re gearing up to launch the MPN Voice Walk to Support Challenge -…
🌍 It's not too late - Wherever You Are, You’re Not Alone. Join us online for the next MPN Voice Global Forum — bringing our international community together for the very latest in MPN care and research! 🗓️ Thursday 3 July 2025 🕕 6–7:30 PM (BST) 💻 Live & Online – Free to Join…
Calling All MPN Patients and Supporters! Join us in Nottingham on Tuesday 5 August 2025 for an uplifting MPN Voice Patients' Forum—a chance to connect, learn, and feel empowered in a warm and welcoming space. 🕐 When: 1–5 PM (arrive from 1 PM for a complimentary buffet lunch)…
Our Young MPN Patient Forum on Saturday was a huge success! 💥 👥 Over 30 young people living with an MPN attended our first ever forum dedicated to young patient experiences and challenges🎙️ we were fortunate to hear talks from specialist clinicians, nurses, researchers, and…
📣 Real stories. Real voices. One powerful community. The MPN Voice team is working behind the scenes on something exciting—a fresh new look for our website. But there’s one thing missing: your story. We know every MPN journey is different. Some are full of unexpected turns.…
✈️ Planning a trip with an MPN? Don’t miss this essential vlogcast from MPN Voice! Professor Claire Harrison from Guy’s & St Thomas’ Hospital, London, joins Nona for a practical and reassuring chat about travelling with myeloproliferative neoplasms. Whether it’s a weekend away…
REGISTRATION NOW OPEN! Don't Miss the MPN Voice Virtual Forum! Are you ready for the latest breakthroughs in haematology? MPN Voice is thrilled to announce that registration is now open for our special 'virtual' forum, bringing you key updates from the prestigious EHA 2025…
Since late 2024, there has been a global shortage of Pegasys, the interferon medicine used by many people living with MPNs. This is due to delays in building a new manufacturing site and gaining the necessary approvals. In the UK, the NHS arranged for patients to be prescribed…
#MPNTimetobeSeen is for UK patients with myeloproliferative neoplasms (MPN), co-created with MPN Voice and funded by GSK. Alisia, living with #MPNs, has found that being part of a supportive community has made a meaningful difference in navigating life with a rare blood cancer.…
📢 GET READY, MPN COMMUNITY! EXCITING NEWS AHEAD! 📢 We're buzzing with excitement to announce a fantastic lineup of in-person MPN forums coming your way across the UK later this year! Mark your calendars because these are opportunities you won't want to miss! 🌟 DATES FOR YOUR…
⚠️ YOUNG MPN WARRIORS – URGENT CALL! 🚨 Time is ticking, and places are extremely limited for our exclusive Young Persons' MPN Forum in London! This is your chance to connect with peers, get expert advice, and feel utterly understood. ARE YOU AGED 40 & UNDER AND LIVING WITH AN…
