Matt T
@MGTmecfs
ME/CFS since 2020 - gofundme ⬇️- #millionsmissing
ME/CFS is a ridiculously relentless disease that gives you ZERO breaks. This disease doesn't care about you or your life. The only thing ME/CFS wants you to do is die. I don't want to die though. I want to be CURED, to be able to live again.
ME/CFS is one of the worst things a human can experience on this planet. In terms of long term suffering and despair, it's in a league of its own. I don't know the reason human souls come to Earth, but ME/CFS destroys any potential reason for being here.
I pray to God every day to heal me and to take away ME/CFS. If I got this disease for a reason, any lesson that needed to be learned has been learned. I just want to live my life. Sadly, even with praying everyday for 5 years, I still have ME/CFS, and it's gotten even worse.
I wonder what my adult life would've been like. I got ME when I was 22. My whole life up until then I was in school. I never got a chance to be an adult. Now I'm turning 28 this year, but I'm still 22 at heart.
Because of ME/CFS, I can't really tell the difference between 3 weeks ago to 3 years ago. Time doesn't exist for me. It's hard to remember when things occurred because of the groundhog day nature of this disease.
I know I am connected to the ME/CFS community on here, but it still feels like I'm all alone. I feel so isolated and distant from everyone.
Living with ME/CFS is so difficult. Every day I look forward to the day ending. It's such a messed up situation. Literally any way you can expend energy: walking, talking, using my phone for too long - it can all cause a crash.
I always dream about things I used to do before getting ME/CFS. In my dreams, I play sports, hangout with friends, and just explore places. At least in my dreams I can do stuff. 🤷🏻
If I ever get cured from ME/CFS, I will consider myself a winner, no matter what else I do with the rest of my life, I will always be a winner for surviving ME/CFS.
Having severe ME/CFS for a year would be dreadful. Living with it for 5 years is unthinkable. I don't really know how I've survived this long honestly.
I got ME/CFS after an intense workout I did when I was still recovering from Covid in 2020. I was suffering from extreme insomnia and sleep deprivation during this time as well. That's how it happened for me.
The only thing I want is a second chance, a second chance for a life worth living. Whenever this ME/CFS nightmare ends, I'll never take anything for granted again.
It's hard to talk to people who don't understand the horrific nature of ME/CFS. People ask me what I've been up to and I don't even know what to say. Rotting away in a house for the last 5 years, hbu?
No one cares about you when you're sick with a chronic illness. I've lost every friend I've ever had basically. I've just been irrelevant to everyone since I disappeared from society. #MECFS me/cfs #LongCovid
In high school, I had no idea what ME/CFS even was. I had never heard of it. Now, I am an expert in it unfortunately, and even when I think I have everything "under control," the disease reminds me of how terrible it is.
I feel like a failure sometimes. I graduated from university and was about to have a career, and then ME/CFS took all of it away. Since then, I've been sitting in a house year after year waiting for help that may never come.
One of the biggest issues I have is finding things to do during the day that won't hurt me. With ME/CFS, anything that expends energy can cause a crash, so I have to be very careful. I'm awake for 15-16 hours a day, so it's extremely difficult to fill the day out.
Waking up every day without anything to look forward to is very depressing. I always think to myself: "there has to be something I can do to fix this" but in the end, nothing ever changes. ME/CFS patients can't really do much to change their reality, which is why it's so terrible