LGS Foundation
@LGS_Foundation
The LGS Foundation is dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.
This is going to be a great meeting - hope to see you there!!
📣 Limited number of scholarships for LGS healthcare providers to participate in a unique opportunity! Be part of shaping the future of LGS care. Email us at [email protected] by June 16th for more information. 🔗 View Agenda & Learn More at ow.ly/MS4H50W6lVU
📣 Limited number of scholarships for LGS healthcare providers to participate in a unique opportunity! Be part of shaping the future of LGS care. Email us at [email protected] by June 16th for more information. 🔗 View Agenda & Learn More at ow.ly/MS4H50W6lVU
The @LGS_Foundation #MoM was a huge success!🙏😃 Proud to be involved and work with truly phenomenal minds! #LGS @TheNotoriousEEG @RShellhaasMD @TracyDixonSalaz @WashUNeurology
@LGS_Foundation The LGS Research Meeting of the Minds brought together caregivers, scientists, and clinicians to advance evidence-based LGS care across the lifespan. This special meeting was filled with powerful, heartfelt testimony that grounded the science in lived experience.…
The 2025 LGS Research Meeting of the Minds exceeded all expectations! Thanks again to everyone who made it possible! 🧠🔬🧬
Thanks to @LGS_Foundation for inviting us to participate in this important conference and the #epilepsy #research that will be born from this meeting! 💜💚
We're here and so proud to present and participate at the LGS Foundation’s Meeting of the Minds. Collaboration across our communities is the cornerstone of progress in Lennox-Gastaut Syndrome.
On July 21-22, 2025, the Lennox-Gastaut Syndrome (LGS) Foundation will bring together hundreds of caregivers, researchers, healthcare providers, clinical trialists, scientists, advocacy group members, and industry partners for the Foundation's third biennial LGS Research Meeting…
Our Adults with LGS section is designed to guide families and caregivers through the transition to adulthood. No matter where you are in the process, we have tools to help you plan for what’s ahead. 👉 Explore now: ow.ly/KCqq50WeQMO
We're offering a limited number of #scholarships for healthcare providers to take part in the Meeting of the Minds. If you're passionate about improving outcomes for those with LGS, we want to hear from you. 🧠 Email us @ [email protected] by June 24 to learn more!
Excited to see our @PCORI sponsored comparative effectiveness research on #epilepsy #LGS study protocol published @FrontiersIn. Multicenter effort with awesome advocates @LGS_Foundation @LGS_F @TracyDixonSalaz @PedsEpilepsyDoc & more! Open access link: frontiersin.org/journals/neuro…
📣 A limited number of scholarships are still available for LGS healthcare providers to participate in a unique opportunity to help shape the future of LGS care. Don’t miss out—email us at [email protected] by June 16 to learn more. 🔗 ow.ly/MS4H50W6lVU
A couple of LGS Foundation team members are headed to BIO International Convention this week!🧬✨ We’re excited to be part of the action — learning from industry leaders, exploring emerging trends, and representing the important work we do every day. 👏 #LennoxGastautSyndrome
#WhereIsSavannahRaineToday She’s at -#BIO2025 with our Executive Director @TracyDixonSalaz. Let’s find better treatments and cures!
The world can’t wait! #BIO2025 We couldn’t save our sweet #SavannahRaine from #LennoxGastautSyndrome but we will fight on for better treatments and cures. #RareDisease #Epilepsy #WhereIsSavannahRaineToday @LGS_Foundation
Looking forward to attending #BIO2025 in Boston this week. Hope to see you there!
You’re not alone. 💜 If LGS is part of your world, join a virtual session created in collaboration with the @LGS_Foundation — a safe space for caregivers and families to feel supported. 🔗 iridiumce.com/lgs-patientcar… #LGSCommunity #CaregiversMatter #EpilepsySupport #LGSFoundation
Caring for patients with hashtag#LennoxGastautSyndrome and hashtag#DEEs requires up-to-date knowledge and a team-based approach. In this CME Snack, Dr. Elizabeth Thiele and Bethany Thomas, DNP explore the latest clinical trial data and real-world insights, offering strategies for…
Save the Date for the 10th International Family & Professional Conference! 📆 July 9-11, 2026 📍Orlando, FL This powerful event is designed to better understand the causes, treatments, and everyday challenges of living with #LennoxGastautSyndrome. 🔗 lgsfoundation.org/lgs-conference
Our Epilepsy Surgery page offers comprehensive information on various epilepsy surgeries to help individuals and families understand their options. 👉 Learn more at ow.ly/sWja50W4Rk6 #LennoxGastautSydrome #Epilepsy #EpilepsySurgery
Pediatric neurologist Dr. Shafali Jeste will explain neurodevelopmental disorders: what they are, how they’re diagnosed, how they can overlap with epilepsy, and how the correct diagnosis can help unlock proper supports and services for your child. ow.ly/ezyj50VZJHJ
"Nonseizure- and Seizure-Related Benefits of Cannabidiol Treatment in the Real World" highlights not just the reduction in seizures, but also improvements in cognition, communication, emotional well-being, and quality of life. 👉ow.ly/fntT50VXtHJ #LennoxGastautSyndrome
