Lupus Association
@LADAOrg
Improving access to care & quality of life by wielding the patient voice as a catalyst to advance advocacy, education, awareness & research efforts.
#LADAOrg is honored to sponsor #LUPUS2025 and bring our mighty team to learn, engage, and share insights. #Lupus @Lupus_Chat @CoLN2007 @CaringForLupus @KathleenArntsen @Dave_Arntsen @Annezab @TiffanyAndLupus @MilDiva81 @whitneywarriors @AutumnAustin616 Dina Thachet, Evanne Grate
170+ groups representing America's seniors, rural communities, and other underserved communities support ECAPS. Thank you @LeaderJohnThune and @MarkWarner for championing #S2426 to protect America’s seniors. @infusioncenter @GHLForg @aimedalliance
✅ #PrecisionMedicine is IMPORTANT in #Lupus, but PERSONALIZED medicine, - taking into account the personal socio-economic determinants & patient #vulnerabilities-, is even MORE IMPORTANT. Check our latest PAPER with @G_O_Daniel & Zoe from @LupusEurope at: sciencedirect.com/science/articl…
✅ Very happy to report that we have completed the #LBFSS study STEP2!! An international panel of experts 🧑🎓 & patients(-representatives) from @LupusEurope have triaged the #lupus #brainfog domains from step 1 and selected those relevant for inclusion in the #LBFSS questionnaire!
🚨 New meta-analysis: Circulating follicular helper T (cTfh) cells are significantly increased in SLE patients, highlighting their role in disease development. Elevated cTfh may be promising biomarkers? 🔬🩺 #Autoimmunity #SLE #Immunology #Research sciencedirect.com/science/articl…
@GlobalCRC's @AndrewRSpiegel discusses how importing European-style price controls via the "most favored nation" #MFN drug pricing means European-style health outcomes: fewer new drugs, reduced access, higher death rates: #MedicinesForNoone @LADAOrg @WarOnCancer @IFAiArthritis…
Large PBMs and their unfair business practices are forcing community pharmacies, like Ten Acres in Sacramento, out of business. SB 41 will improve transparency into drug costs and provide true accountability. tinyurl.com/4wv5mebm
@WarOnCancer ICAN's @marciakhorn discusses how the "most favored nation" #MFN drug pricing disincentivizes new drug development, reduces patient access, and leads to more cancer deaths: #MedicinesForNoone @LADAOrg @GlobalCRC @IFAiArthritis @patientaccess youtu.be/uLYYjFs5wFs
The 340B Program’s rapid expansion has been linked to insurance premium increases of $22 billion a year, costing families $415/year. This was never the goal. @SenMullin please support #340BReform to restore integrity & reinvest savings in care. nationalalliancehealth.org/wp-content/upl…
Insurer, PBMs & manufacturer “advocacy groups" want to gut current FDA safeguards for interchangeable #biosimilars to override state patient protections laws and force-switch patients to the most profitable- not the most appropriate- biologic medicine. Note that NO PHYSICIAN or…
Insurers, PBMs & manufacturers want to gut current FDA safeguards for interchangeable biosimilars—to override state patient protections laws so they may force-switch patients to the most profitable- not the most appropriate- biologic medicine. Note that NO PHYSICIAN or PATIENT…
We urge @CongBoyle to stand with pharmacists and seniors by cosponsoring #HR3164. This bill is key to strengthening access to care in Pennsylvania and across the U.S. bit.ly/ecaps-119th-co…
🌟CARRA is thrilled to welcome Rachel Myslinski, MBA, as our new CEO. Rachel is a senior executive with more than 20 years of experience in healthcare. Read more ➡️ carragroup.org/carra-announce…
🚀 Discover the Promising Role of GLP-1 Antagonists in Rheumatology: the pros and cons! A joint recent publication with Drs Bilgin and Venerito that I really enjoyed!
🚀🚀🚀🚀 ‼️‼️Fresh publication‼️‼️ 👉👉GLP-1 RAs are the hot topics of recent years. 👉👉They are promising effects in rheumatologic diseases. ⚠️Robust evidence is needed First of fruitful collaborations with @DBogdanos @vincevenerito @sakaryauni @ElsevierTurkiye
The ACR is disappointed Congress passed the #BigBeautifulBill, which could jeopardize Medicaid access for 11.8M Americans (read more: acr.tw/44vO6V0). We urge lawmakers to prioritize expanding care—not limit it for vulnerable patients.
The U.S. House of Representatives will vote any day now on a bill that will kick millions off Medicaid and increase health care costs. Before they vote, urge your representative to vote NO! Thank you @ACSCAN for your leadership on this crucial issue! act.fightcancer.org/a/now-is-the-t…
✅ Very happy to report that we have completed STEP 2 of #LUPUSALERT, asking a large international panel to triage & prioritize #lupus #vulnerabilities suggested during step 1, for inclusion in the final screening questionnaire 👍 Thanks to you all for your contributions 👏
✅ Check my visual summary for the @ACRheum #recommendations for the screening 🔎 and treatment 💊 of #LUPUS #NEPHRITIS ⬇️ What would you change? Please DO let me know if an update 🔄 is needed 👍
Louisiana is facing high drug prices, thanks to PBMs’ control over prescription costs. @LAGovJeffLandry, please continue to push for #PBM reform, ensuring compensation isn't linked to drug prices to reduce the financial burden on patients. #LALeg
Please join us in urging @RepLindaSanchez to cosponsor #HR3164. Seniors in California and across the country deserve access to prompt, essential care from pharmacists. Learn more about #HR3164 here: bit.ly/ecaps-119th-co… @GHLForg
We are one of 77 groups urging @SenRickScott and@SenAshleyMoody to reject proposed federal cuts to health care and SNAP. Floridians will experience a devastating loss of essential health coverage & food assistance if these cuts are enacted. floridapolicy.org/posts/77-group…
