Prof. Karen Woolley

So excited about this conference in a few months- here's hoping all of you out there who are interested in learning more about #PatientEngagement in #Research will join us. The program is entirely designed by #PatientPartners! #ConsumerInvolvement #PPI

Power in patient partnerships. Much to learn...hope this recent publication helps all members of research teams (patients and nonpatients). More here: linkedin.com/feed/update/ur…

Awareness of the importance of using #PatientAuthor as one affiliation is increasing. Best way to find patient-authored publications...with patient authors' permission. Transparency helps! linkedin.com/feed/update/ur…

May the updates to reporting guidelines continue - is Patient and Public Involvement reported (if not, why not?) #PPI @EQUATORNetwork Well done to #CONSORT #SPIRIT #CHEERS

International #ClinicalTrialsDay 2025 - will 2026 see a better way for #patients to find trials they (& other patients) trust? Our 'call-to-action' publication identifies a gap in registries that should be fixed. #CTD2025 #PPI

What if the flip happens? A patriarchal dismissal of #Patient involvement in #publications might be dismissed sooner than (some) people think. Ready to adapt processes, practices & attitudes? #PatientAuthor #PlainLanguageSummary @ISMPP

#ISMPPAnnual - have times changed? #PatientAuthor

Plain language summaries of publications = Good. Not being able to find them = Bad. The multi-publisher initiative #PLSFinder aims to make it easy to find trusted and understandable summaries of the latest medical research. linkedin.com/feed/update/ur… #PlainLanguageSummary #PLS

So good! With #ISMPPAnnual coming, check out NEW #SPIRIT guidelines re, patients (NEW - #11), plain language summary (NEW - #8), professional writers (sensibly out - part of #3). Planning for #PPI = better budgets for #PPI @ISMPP pubmed.ncbi.nlm.nih.gov/40295741/

#Pharma & #patients - partners in R&D? Improving, but so much more to do! "... an imperative for the pharmaceutical sector, since regulatory bodies increasingly expect evidence of patient engagement throughout the product lifecycle." patient-view.com

Game-changed and short-changed in one hit? Some thoughts on the new CONSORT guidelines and #PPI reporting. tinyurl.com/ydxk8prb

Too true - you can't have evidence-based guidance without an evidence base! "Patient involvement in a study should be reported within a paper to ensure that this knowledge contributes to building the PPI evidence base for practice." #PatientAuthor #PPI @ISMPP

NEW PAPER: Updated CONSORT-2025 for reporting randomised trials is now available in the @bmj_latest @JAMA_current @TheLancet @NatureMedicine @PLOSMedicine —> bmj.com/content/389/bm… #OpenScience #OpenAccess #transparency #medX #statsX #epiX

I'm pleased to share that I'm now a Co-Chair of the Cochrane Patient and Public Involvement Network Executive. Cochrane will no longer use the term ‘consumer’ to represent patients and the public. Learn more here: cochrane.org/news/cochrane-… #public #involvement #research #evidence

Time to vote @ISMPP members...bios reinforce just how much these talented candidates are willing to give their time and expertise to our organisation.