Jared Whitlock

@Jared_Whitlock

Features editor @endpts. Reach out privately on Signal: jaredwhitlock.73

San Diego

Joined September 2010

869Following

2KFollowers

Pinned

Jared Whitlock@Jared_Whitlock · Jul 16, 2024

For 3.5 years, I followed teenager Connor Dalby and family while a custom treatment was developed for his seizures. The journey revealed a lot about personalized medicine's failures, and promise. endpts.com/a-teenager-fac…

Jared_Whitlock's tweet card. SAN DIEGO — Connor Dalby’s shrieks filled his playroom, and the rest of the house. The teenager hushed when his mom, Kelley, asked a long-coming question: “Are you ready for the ...

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Jared Whitlock@Jared_Whitlock · 5 h

Sarepta's crisis week: How questions over patient deaths put the biotech's future in jeopardy w/ @leilei_wuu, via @endpts endpoints.news/how-sareptas-c…

Jared_Whitlock's tweet card. Sarepta halts Elevidys shipments after FDA request over safety concerns, following deaths of two teens. Company faces crisis as FDA demands new safety studies for DMD gene therapy.

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Jared Whitlock@Jared_Whitlock · Jul 23

In order to turn personalized therapies for rare diseases (like baby KJ) into a new standard of care, Birmingham said FDA should establish a dedicated oversight group within FDA to review personalized therapeutics, set transparent safety and ethics standards & ensure rigorous…

PPearl Freier@PearlF · Jul 23

Former Intellia Tx CEO now operating partner at @khoslaventures Ness Birmingham published an op-ed in @thehill calling for the FDA to have a dedicated framework that clarifies the rules, requirements & incentives including a new pathway for bespoke therapeutics & n-of-1 drugs

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Jared Whitlock Retweeted

Drew Armstrong@ArmstrongDrew · Jul 22

Trump's online loyalty enforcer Laura Loomer has decided to target FDA's Vinay Prasad (a sentence I never thought I would write), from MAHA chronicler @maxonwifi endpoints.news/trump-loyalty-…

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Jared Whitlock Retweeted

Adam Feuerstein ✡️@adamfeuerstein · Jul 22

EXCLUSIVE: Sarepta Therapeutics’ $SRPT Duchenne therapy faces ‘arduous’ path back to market, senior FDA official says statnews.com/2025/07/22/fda… via @Jasonmmast and me.

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Jared Whitlock@Jared_Whitlock · Jul 22

Sarepta halts US shipments of Duchenne therapy, bowing to FDA endpoints.news/sarepta-halts-…

Jared_Whitlock's tweet card. Sarepta Therapeutics halts Elevidys shipments after FDA request, reversing earlier stance. Drug linked to two deaths in Duchenne muscular dystrophy patients.

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Jared Whitlock@Jared_Whitlock · Jul 21

A must-read on the growing split inside RFK's MAHA movement:

MMax Bayer@maxonwifi · Jul 21

My latest feature, on the growing revolt within key parts of MAHA after three mRNA vaccine approvals under @SecKennedy and @DrMakaryFDA. endpoints.news/fdas-continued…

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Jared Whitlock Retweeted

Drew Armstrong@ArmstrongDrew · Jul 21

🤫And if you work at @Sarepta or at the FDA on this issue, you can reach them on Signal (the confidential messaging app). Make sure you're using a personal device. Here are their handles: 🕵️‍♂️Jared: jaredwhitlock.73 🕵️‍♀️Lei Lei: leileiwu.24

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Jared Whitlock Retweeted

Drew Armstrong@ArmstrongDrew · Jul 21

Missed our show? You can see our emergency Sarepta episode here, where @endpts reporters @leilei_wuu + @Jared_Whitlock talk about reporting on biotech's biggest story right now. youtube.com/live/ktsbEth4p…

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Jared Whitlock Retweeted

Lei Lei Wu@leilei_wuu · Jul 21

(reposted w/ link) Returned from Japan at midnight ➡️@endpts Post-Hoc Live about @Sarepta at 1:30 pm ET today. Join me, @ArmstrongDrew and @Jared_Whitlock to catch up on all that's happened around Sarepta and its DMD gene therapy last week endpoints.news/endpoints-live…

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Jared Whitlock@Jared_Whitlock · Jul 21

I'm looking forward to the conversation, and please be in touch with any tips you might have. Signal: jaredwhitlock.73

DDrew Armstrong@ArmstrongDrew · Jul 21

🎙️ Today on Endpoints News Post-Hoc Live, we're talking about @Sarepta. I'll be joined at 1:30pm by @Jared_Whitlock and @leilei_wuu about the company's showdown with the FDA over its hashtag #duchenne gene therapy + what comes next endpoints.news/endpoints-live…

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Jared Whitlock Retweeted

Dr. Alison Bateman-House@ABatemanHouse · Jul 19

Sarepta says it won't pull Duchenne gene therapy, setting up showdown with FDA - endpoints.news/sarepta-says-i…

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Jared Whitlock@Jared_Whitlock · Jul 19

Sarepta says it won't pull Duchenne gene therapy, setting up showdown with FDA endpoints.news/sarepta-says-i…

Jared_Whitlock's tweet card. Sarepta Therapeutics refuses FDA request to halt Elevidys shipments after two patient deaths, setting up conflict. FDA also places hold on company's other gene therapies.

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Jared Whitlock@Jared_Whitlock · Jul 18

We are closely reporting on @Sarepta and the FDA's request to stop selling its Duchenne treatment If you have any tips, please contact me on Signal at jaredwhitlock.73, including if you work at Sarepta or were recently let go in this week's layoffs.

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Jared Whitlock Retweeted

Drew Armstrong@ArmstrongDrew · Jul 18

🚨FDA is asking Sarepta to pull DMD drug Elevidys endpoints.news/fda-asks-sarep…

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Jared Whitlock@Jared_Whitlock · Jul 18

$SRPT More confirmation here from @Jared_Whitlock of what we heard. The patient death occurred one month ago. Let that sink in when you think back to yesterday.

DDrew Armstrong@ArmstrongDrew · Jul 18

Another Sarepta patient has died, the company confirmed, this time in a study of its limb girdle therapy, @Jared_Whitlock reports: endpoints.news/sarepta-patien…

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Jared Whitlock Retweeted

Drew Armstrong@ArmstrongDrew · Jul 18

Another Sarepta patient has died, the company confirmed, this time in a study of its limb girdle therapy, @Jared_Whitlock reports: endpoints.news/sarepta-patien…

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Jared Whitlock@Jared_Whitlock · Jul 18

Sarepta Therapeutics said that a patient died in a clinical trial testing one of its gene therapies for limb-girdle muscular dystrophy, the latest death for a company that’s already under heightened scrutiny for safety concerns. endpoints.news/sarepta-patien…

Jared_Whitlock's tweet card. Patient dies from liver failure in Sarepta Therapeutics' gene therapy trial for limb-girdle muscular dystrophy, following two deaths in company's Elevidys DMD program.

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Jared Whitlock@Jared_Whitlock · Jul 15

The Trump administration disbanded a newborn screening panel. Advocates now face a harder path. “It’s not acceptance. It’s next-level rage," one parent told me. endpoints.news/the-trump-admi…

Jared_Whitlock's tweet card. atient groups face a harder and unpredictable path going state-by-state to boost screening for rare but treatable conditions after the Trump administration disbanded a federal advisory committee on...

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Jared Whitlock Retweeted

Endpoints News@endpts · Jul 14

Endpoints biotech correspondent @ky_lahucik is in Kigali, Rwanda, this week to cover #IAS2025, the main conference for HIV science. We'll be posting updates, stories and photos from him here:

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Jared Whitlock Retweeted

Amber Tong@AmberTongPW · Jul 14

Chinese drugmakers have come a long way from their copycat days to challenge Western dominance on innovation. Our latest story visualizes this stunning advance, with data from @NorstellaCo with @hongjinshan and @spepechen: bloomberg.com/news/features/…

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