Imagining Futures
@ImaginingFuture
ESRC/Wellcome Trust research programme exploring the social and ethical implications of genomic screening in the UK. Prof Felicity Boardman, Dr Corinna Clark
So great to see this collection come together! After a fascinating few days at @Fond_Brocher in the summer of 2023, we now have an edited collection of papers addressing the question of severity and its uses in genomics nature.com/collections/ji…
New paper: comparing in-person and remote qualitative data collection @JulieRoberts12 @sophie_stan2 @Corinna_Clark_ @fegriffiths
📣New paper from QRDC project 📣“Comparing In-Person and Remote Qualitative Data Collection Methods for Data Quality and Inclusion: A Scoping Review” is now published and is available at doi.org/10.1177/160940…
📢new paper involving IF team 📢Establishing the performance and acceptability of dried blood spot sampling to screen for islet‐specific autoantibodies - Faustini - 2025 - Diabetic Medicine - Wiley Online Library onlinelibrary.wiley.com/doi/10.1111/dm…
📢New Paper Involving IF Team: a systematic review on the attitudes of individuals with/at risk of adult-onset genetic conditions on reproductive genetic testing📢 onlinelibrary.wiley.com/doi/10.1002/jg…
Great time presenting IF study findings at #ESHG2025 today :)
📢 New paper involving IF team 📢Establishing the performance and acceptability of dried blood spot sampling to screen for islet-specific autoantibodies onlinelibrary.wiley.com/doi/10.1111/dm…
How to use the QRDC guidance for remote qualitative studies 👇
What is the QRDC guidance and how could it help you design your remote qualitative study? See here: warwick.ac.uk/fac/sci/med/re…
New Paper: Special Issue in EJHG on Severity. What started as a @Fond_Brocher workshop in the summer of 2023 is now a wonderfully rich and diverse collection of papers spanning policy, practice and lived experiences: doi.org/10.1038/s41431…
New Paper: #JMIR #Preprint: Advances in newborn screening: development of an online scenario-based tool to enable research participation and public engagement. preprints.jmir.org/preprint/59686 #digitalhealth via @jmirpub
New article on the QRDC guidance: ncrm.ac.uk/news/show.php?… @NCRMUK @JulieRoberts12 @ImaginingFuture @sophie_stan2 @chinwe_onuegbu
SERG meeting registration now open for our London meeting (25th Nov) warwick.ac.uk/fac/sci/med/re… @SergNetwork @ImaginingFuture @JaneChudleigh
📣Save the date! Next SERG meeting Mon 25th Nov 10:00am, Friend's House, Euston Rd, London. Hybrid available. Focus: Newborn screening for rare diseases. Speakers @CelineLewis23 (generation study) @JaneChudleigh (SCID pilot) sign up details to follow📣
New paper involving IF team: Full article: Neurologists’ understanding of reproductive medicine options for genetic forms of motor neuron disease tandfonline.com/doi/full/10.10…
Use of remote methods in qualitative research has various impacts; for participants, for researchers, and for the data produced. Careful study design and delivery are so important. See new guidance, available from today:
Are you planning to use remote qualitative methods? We are delighted to announce the publication of the QRDC guidance to support you in designing and delivering your study. You can access it here: publishing.warwick.ac.uk/index.php/uwp/…
SERG is a great place for relaxed discussion. You don't need a 'polished'/finished study to present at SERG, we revel in the uncertainty, messiness and realities of research! Works in progress, 'failed' grant applications, field work stories & future dreams are all supported :)
We are looking forward to welcoming you to SERG tomorrow (11th Sept) at University of Warwick! If you are at @BSAMedsoc this year, stop in and see us! Room H0.03 Humanities building, 10-12pm. Free event, Lunch included. Remote options available!
📢Less than a week to go to the next SERG meeting!📢Hybrid event, so if you can't get to Warwick, join us online, we can't wait to chat social science, ethics and genomics with you! warwick.ac.uk/serg
New Paper: Parents' views of wider genomic screening as part of newborn Cystic Fibrosis screening doi.org/10.1016/j.ssmq…
New paper: Preferences for Peer Support Amongst Families Engaged in Paediatric Screening Programmes: The Perspectives of Parents Involved in Screening for Type 1 Diabetes in Children Aged 3–13 @parthnarendran @mj_randell dx.doi.org/10.1111/hex.70…
Are you heading to BSA medsoc at Warwick next week? If so, stop by at our SERG meeting for a free and fascinating discussion of the social and ethical aspects of genomics :) 11th Sept 10am at Warwick or remotely. Register here warwick.ac.uk/serg @BSAMedsoc
New paper: How can seriousness be framed in a meaningful way in the context of genomics? Unpacking the notion of “serious” genetic conditions: towards implementation in reproductive decision-making?rdcu.be/dRq2M @ErikaKleiderman