Hydrocephalus Assoc.
@HydroAssoc
Our mission is to find a cure for #hydrocephalus & improve the lives of those impacted by the condition.
Shunt systems manage #hydrocephalus by redirecting excess CSF from the brain. While all shunts serve the same basic function, there are different types to meet individual needs. Discover how each type works & what makes them different in this article: hydroassoc.org/types-of-shunt…
Are you free today at 3pm ET? Join us for Yoga on the Brain! This meetup is meant to be a space where yoga therapy practices are offered as a tool for supporting personal symptoms of hydrocephalus & neurological conditions. Register here: us02web.zoom.us/meeting/regist…
We’re excited to launch the Hydro Heroes Unite podcast in collaboration with Taisha Cameron! 💙 Season 1 dives into pediatric hydrocephalus—created for and with the hydrocephalus community. Listen, share & grow with us: taishacameron.com
We’re officially 365 days away from HA CONNECT 2026! 🎉 What are you most excited for? If you haven’t signed up for Conference emails yet, now’s the time. Get the latest updates and be the first to know when registration opens: hydrocephalusconference.org
It’s #WorldBrainDay! This year, we’re shining a light on Brain Health for All Ages—because brain health matters at every stage of life, from the very beginning through aging adulthood. Help us spread the word and share the importance of lifelong brain wellness. #WBD2025
Wonderful to see Billy Joel doing well after treatment for Normal Pressure Hydrocephalus (NPH). This treatable condition affects 800K+ people over 60 in the U.S.—but is often misdiagnosed. Know the signs: walking issues, incontinence, memory changes. hydroassoc.org/knownph
Billy Joel Shares Health Update in New Interview After Brain Disorder Diagnosis today.com/health/news/bi…
NIH research funding is under threat. Proposed cuts to indirect costs would harm the institutions behind lifesaving #hydrocephalus research. Learn what’s at stake & tell your reps to oppose these cuts: hydroassoc.org/issue-brief-bi… #IndirectCosts #NIHfunding #AdvocacyMatters
Meet Alia, born at 28 weeks with hydrocephalus. Her story is one of hope, gratitude & the belief that light does come at the end of the tunnel 💙 Read more: hydroassoc.org/people-view/al…
Are you a medical professional who treats hydrocephalus? 🩺 Join our Physicians' Directory to help patients find expert care and support. Add your name today: hydroassoc.org/join-the-physi… #Hydrocephalus #Neurosurgery #Neurology #Neuropsychology
Share your feedback, shape the future — it only takes 3 minutes! 🎁 You’ll be entered to win a $50 Amazon gift card (we're raffling off two!) 🛍️ Plus, get 30% off your next HA Store order just for sharing your feedback. 💻 bit.ly/4eIkyrI
Yoga on the Brain returns next week, July 24th & 3 pm ET. This virtual session offers yoga therapy practices designed to support people living with hydrocephalus. Sign up here: hydroassoc.org/event/virtual-…
Stephanie Bauer is running the Marine Corps Marathon in honor of David, a young boy with hydrocephalus. She's running for awareness, research, and hope—and you can too. Join our 2025 team or sign up for future races: hydroassoc.org/endurance-fund…
Advocate Spotlight 🎉 Bella Ferris, a young hydrocephalus advocate, joined @speaknowforkids at #FAD2025 in D.C. Meeting with leaders like @SenAdamSchiff , @RepBrownley , @RepFriedmanCA and more. Learn how you can take action: bit.ly/3IHpVLM
No one understands the journey like another parent living it. 💙 Join one of our three virtual support groups created just for parents and caregivers. Share, connect, and find strength in community. hydroassoc.org/find-a-communi…
What’s the difference between a programmable and fixed pressure valve why does it matter? Knowing how your (or your child’s) shunt valve works can help you ask better questions & make informed decisions. Learn more: hydroassoc.org/programmable-v… &
Meet Hannah 👋 Hannah’s mom shares their story with hydrocephalus, a journey that began at their 20-week scan. At just 4 days old, Hannah had her first brain surgery. She has multiple hospital stays, but she has defied the odds every step of the way💙 hydroassoc.org/people-view/ha…
We support Global Get-A-Head day because no matter where a baby is born, early detection matters! It’s time for global standards that protect every child! 🌎💙 #GlobalGetAHead #HydrocephalusAwareness #Hydrocephalus #HarrysHAT #GetAHead
Thank you to the #hydrocephalus advocates who spoke out to protect Medicaid. 💙 The One Big Beautiful Bill passed, but our fight for equitable, affordable healthcare continues. Read our full statement: hydroassoc.org/ha-statement-o… #MedicaidMatters #HealthEquity #AdvocacyMatters
It’s National Video Game Day! 🎮 We’re celebrating with Games4Brains because gaming can do good! Check out how you can turn your screen time into support for the hydrocephalus community: hydroassoc.org/games-for-brai… #Hydrocephalus #GameForGood #VideoGames
Don’t wait any longer! Sign up for a WALK today and start fundraising to help us find a cure. Every step brings us closer! 💙 hydroassoc.org/find-a-walk-ne…
