Epilepsy Research Institute

Thanks to the generosity and commitment of our supporters, the Epilepsy Research Institute is proud to announce a major investment of over £1.7 million in eight cutting-edge research projects in 2025. Find out more about the studies here: epilepsy-institute.org.uk/eri/news/epile… #epilepsy

We’ve built the UK's largest community of people affected by #epilepsy who want to influence and shape research. Join the Shape Network to hear about opportunities to take part in research, including using your experiences to aid with study design: epilepsy-institute.org.uk/supporters/way…

🚴‍♂️ Whether you’re new to cycling or a seasoned pro, the London to Brighton Cycle Ride this September is a must! Enjoy 54 miles of iconic landmarks, beautiful countryside, and finish on Brighton’s stunning beachfront. Take on this rewarding challenge and support vital epilepsy…

Thank you, @scottcaroline of @thetimes, for sharing such a powerful and deeply moving account of your family’s experience with #epilepsy. This piece sheds light on the harsh realities of living with the condition - the stigma, hidden dangers and devastating impact of…

Today, we have written to Baroness Merron, Parliamentary Under Secretary of State for Health and Social Care, urging the Government to act on the ‘Hughes Report’ recommendations. Families affected by the avoidable harms of sodium valproate are still waiting for meaningful…

A new £2.7M trial led by @LivUni will test the long-term benefits of vagus nerve stimulation (#VNS) for drug-resistant #epilepsy. Designed in partnership with people affected by epilepsy via the Institute’s Shape Network, the project will include children and adults often…

🚨 New Epilepsy Network in the South East! Four Theme Leads based in SE England are proposing a South East Epilepsy Network for clinicians & academics — potential outcomes: new collaborations, clinical guidelines, a trial registry, all with strong early career researcher…

🥾A huge thank you to Abbie, Charlotte, Kate, Eleanor and Bronwen for taking on the #YorkshireThreePeaks Challenge today in support of the Epilepsy Research Institute! Every step you take helps drive forward vital research💜 Support their efforts here! justgiving.com/page/yorkshire…

⛳ Huge thanks to our incredible supporters at Farnell as they hosted their 21st Golf Day in support of the Epilepsy Research Institute! For over 20 years, Farnell have honoured the memory of James Hirst with this amazing event — raising over £200,000 to drive forward vital…

Today the Epilepsy Research Institute was delighted to be at the launch of the Liverpool Interdisciplinary Neuroscience Research Centre (LINC) at @LivUni. We attended alongside partners from research, policy and industry to celebrate this exciting step forward in brain and mind…

Your support powers research. Research changes lives. Lives like Sophie’s — now seizure-free for 10 years. Will you help fund the next breakthrough? epilepsy-institute.org.uk/one-in-100-don… #Onein100

Find your local MP and invite them to support vital epilepsy research for the #Onein100🗳️ Help us recruit a network of parliamentarians to champion the cause of epilepsy research by using our letter template and MP locator – it only takes a minute! epilepsy-institute.org.uk/onein100/write…

The NHS 10-Year Plan shows ambition – but ambition isn’t action. Without investment in epilepsy research, care and outcomes won’t improve. We support @NeuroAlliance’s call for a dedicated plan for neurological care. Sign the open letter to @wesstreeting: bit.ly/NA-open-letter……

🚨 Last-minute #BerlinMarathon places available! We have 2 charity places for the Berlin Marathon on Sunday 21 September🏃‍♀️ With under 12 weeks to go, we’re looking for dedicated runners ready to take on the challenge and help power life-changing #epilepsy research. 📩 Email:…

Claire left a gift in her Will to epilepsy research, and since her passing her husband John pledged to do the same. John recently reflected on their life together, the challenges Claire faced with courage, and why he pledged to leave a legacy to research. epilepsy-institute.org.uk/eri/news/gifts…

The Epilepsy Research Institute Shape Network is the UK’s largest group of research-interested people affected by epilepsy. If you would like to help shape future research, complete this short questionnaire and join the network today: epilepsy-institute.org.uk/supporters/way…

AMRC’s annual infographic showcases the collective impact of its member charities. We’re proud to be part of this. @AMRC charities are major contributors to UK medical research, investing in universities and the NHS, as well as supporting the R&D workforce from the earliest…

Just 1 in 3 people with neurological conditions like #epilepsy say their care meets their needs. We need action, not words. ✍️ Sign the open letter to @WesStreeting: bit.ly/ActForThe1in6 #MyNeuroSurvey @NeuroAlliance

The @NeuroAlliance #MyNeuroSurvey results are out. We're backing the call for urgent action to improve care for people with neurological conditions, including #epilepsy. ✍️ Sign the open letter and read the report here: neural.org.uk/act-now-for-th…

We're proud to support our friends at @DravetUK as they launch the #LittleMomentsMatter Awards, celebrating the professionals who go above and beyond for families affected by Dravet Syndrome. Nominations are open now: bit.ly/44nS3Ml 💜 #DravetAwarenessDay

🚨 Last-minute marathon opportunity! We have 2 places for the #BerlinMarathon – September 21 🏃‍♀️🏃‍♂️ Run for the Epilepsy Research Institute and help drive life-changing research. With just 12 weeks to go, we’re looking for runners who can commit quickly and go the distance with…