Emma 🦋
@Emma40025133
Long Covid since my first infection in 2021. Caused POTS, MCAS & extreme fatigue. I just never recovered from my acute infection. I feel acutely unwell daily
What I’ve learnt, the hard way. Look after your health. It is important. If you lose it nobody is coming to the rescue. People will watch you suffer, say a few cheap words & do nothing. Put yourself first always 💔
AIDS deaths didn't become acknowledged until 7-10 yrs post infection when tbey began to die. I am seeing this with many cohorts encroaching upon yrs 5-6. Deteriorating, weakening, needing blood transfusions, confined to their beds still without a viable treatment and it does…
Freddy Mercury died of a heart attack while experiencing severe fatigue due to bronchial pneumonia; if we ignore the Lymphocytopenia. We have disremembered how many early AIDS patients were bedridden before their deaths. #LongCOVID is #AirborneAIDS so #WearN95
Anyone remember that guy making videos of himself licking public toilet seats at the beginning of the pandemic? I wonder how he’s getting on these days?
The world isn’t amazing it isn’t incredible it’s not beautiful. It’s a pile of shit. The human body isn’t incredible either that’s shite too
If you have already had mono can you catch it again off someone with an active infection or are you immune to it?
Can relate to this so much
Listening to normal healthy ppl whine & complain about every little thing is so damn annoying & exhausting. 😭 Like I genuinely give a fuck about absolutely nothing anymore. I don't have the energy for this shit
Loads of people have me blocked on here it’s mad. I’ll try comment on someone’s post & find out I’m blocked. Fuck me we should all be in this together but I guess I’m too raw for some people.
I think I’m totally fucked forever. Mcas, pots & me/cfs. I don’t think anyone with all 3 recover. Seems to me only the people with pots alone recover. I can’t do this for much longer
So someone else on TikTok is now back to running after having LC for years. Tbh it just makes me feel even shittier about myself because I know that’s never gonna be me
My folate is slightly below range. Haven’t had a call from doctor to discuss it yet so I’m guessing it isn’t anything to be worried about?

Wish I had money to do things like hyperbaric oxygen therapy. I know it’s not a cure but could give some symptom relief. I feel like every cell & muscle is deprived of oxygen.