ECD Global Alliance

The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce the recipient of its 2024 Early Career Investigator Grant: Dr. Priya Marathe, a clinical instructor in pediatric oncology at Memorial Sloan Kettering Cancer Center (MSK). Dr. erdheim-chester.org/advancing-heal…

The 2025 Get Ready to Run, Walk & Roll for Hope Fun Run has officially come to a close, and we are absolutely thrilled to announce that we not only met our fundraising goal… we surpassed it! erdheim-chester.org/we-did-it-and-…

We’re standing just shy of the finish line—$24,017.57 raised of our $25,000 goal. That means we’re only $982.43 away from achieving something powerful. This campaign has always been about more than a number. It’s about the strength of our community. erdheim-chester.org/only-982-to-go…

Time is ticking. The ECDGA Get Ready to Run, Walk & Roll for Hope Fun Run ends on July 15, and we are so close to our goal. With $20,999.62 raised, we are just a few steps away from reaching our $25,000 target—but we need your help to get there. erdheim-chester.org/final-stretch-…

The ECDGA Virtual Fun Run/Walk/Roll is gaining global traction, with participants already joining in from across the United States and beyond. erdheim-chester.org/join-the-globa…

The 2025 Run, Walk & Roll for Hope brings together supporters from all corners of the globe in the fight to raise awareness for Erdheim-Chester Disease (ECD). erdheim-chester.org/5-ways-to-make…

Participating in the ECDGA’s annual Run, Walk & Roll for Hope is powerful on its own—but forming a team can take your involvement to an entirely new level. erdheim-chester.org/stronger-toget…

The ECDGA Virtual Fun Run/Walk/Roll is picking up momentum with participants from 25 states and counting. We’re on a mission to fill in the entire U.S. map, and we’d love to see your state represented. erdheim-chester.org/is-your-state-…

Each year, the Erdheim-Chester Disease Global Alliance (ECDGA) invites the world to come together for one powerful reason: to raise awareness for Erdheim-Chester Disease (ECD), a rare and often misunderstood form of blood cancer. erdheim-chester.org/the-power-of-c…

When it comes to raising awareness for Erdheim-Chester Disease (ECD), every mile counts—and every method of movement matters. In the 2024 ECDGA Fun Run, one incredible team reminded us all of that in the best way possible. erdheim-chester.org/team-peddling-…

Every year, a powerful wave of determination, compassion, and solidarity spreads across the globe as individuals lace up their shoes to participate in the Erdheim-Chester Disease Global Alliance’s (ECDGA) annual Run, Walk & Roll for Hope. erdheim-chester.org/lace-up-for-ho…

The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2025 Global Steps Towards Awareness & Hope Virtual Fun Run, Walk & Roll! Register Today erdheim-chester.org/racing-toward-…

The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2025 Global Steps Towards Awareness & Hope Virtual Fun Run, Walk & Roll! erdheim-chester.org/event/get-read…

The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to share that our Medical Advisory Board member, Dr. Oshrat Hershkovitz-Rokah, will co-present a pivotal educational session at the 2025 European Hematology Association (EHA) Congress. erdheim-chester.org/attending-eha2…

During the 2025 ECDGA Medical Symposium in Barcelona, physicians from around the world shared their latest findings and research focused on Erdheim-Chester Disease. erdheim-chester.org/advancing-ecd-…

Here is the group photo of the doctors who participated in the 2025 ECDGA Medical Symposium in Barcelona. erdheim-chester.org/medical-expert…

Members of the ECDGA Medical Advisory Board and the Board of Directors came together during the Celebration Dinner at the 2025 Patient and Family Gathering in Barcelona. erdheim-chester.org/ecdga-leadersh…

During the 2025 Patient and Family Gathering in Barcelona, Father Charles Balnaves was recognized as the ECDGA Community Champion. erdheim-chester.org/father-charles…

At the 2025 ECDGA Patient and Family Gathering in Barcelona, Professor Julien Haroche was honored with the Mark Heaney Award for Excellence in ECD Clinical Care and Research. erdheim-chester.org/professor-juli…

At the 2025 ECDGA Celebration Dinner in Barcelona, the Host Award was presented to Dr. Xavier Solanich of Bellvitge Hospital. erdheim-chester.org/dr-xavier-sola…