Desmoid Tumor Research Foundation

💡Connection is at the core of the DTRF’s strategy each year. Our staff convenes #desmoid tumor groups biannually from around the globe for a virtual, roundtable meeting. 🔗 If you run a patient group in your country, email us at [email protected] for more information.

✨️ Meet DTRF Int'l Research Workshop Featured Presenter: Cristabelle De Souza, PhD, Stanford University School of Medicine 🔗 Learn more and register here: donate.dtrf.org/TWW2025⁠ ⁠ #DTRF #desmoid

⭐ Your donation TODAY helps the DTRF accelerate desmoid tumor research, education, and advocacy for years to come! Every single dollar counts: donate.dtrf.org/Give-DTRF20yea… #DTRF #desmoid #desmoidtumor

✨️ Meet DTRF Int'l Research Workshop Featured Presenter: Mrinal Gounder, MD, Memorial Sloan Kettering 🔗 Register here: donate.dtrf.org/TWW2025 #DTRF #desmoid #desmoidtumor

Missed the #SARCtrials Semi-Annual Meeting? Here's your chance to watch Prof. Dr. Patrick Schöffski (@schoffski) & Dr. Breelyn A. Wilky (@breelynwilkyMD) discuss all things on tx options for #DesmoidTumor: bit.ly/43YODj8 #sarcoma #oncology @DTRFoundation @PeerView

✨ The DTRF is excited to welcome Christina Kosyla to its Board of Directors. Christina was diagnosed with a desmoid tumor in 2018 and is currently serving as Program Coordinator at the Cactus Cancer Society. 🔗 Learn more: dtrf.org/about-dtrf/boa… #DTRF #desmoid

🎟️ Register to attend the DTRF Int'l Desmoid Tumor Research Workshop in-person or virtually here: l8r.it/AsMC #desmoid #DTRF

✨ The DTRF is excited to welcome John MacKinnon to its Board of Directors. John was diagnosed with a desmoid tumor in 2023 and is currently serving as Sr. Procurement Counsel at Johnson & Johnson. 🔗 Learn more: dtrf.org/about-dtrf/boa… #DTRF #desmoid

🎟️ Register to attend the DTRF Int'l Desmoid Tumor Research Workshop in-person or virtually here: donate.dtrf.org/TWW2025. ✨ Use the promo code TWWCHICAGO20 for 20% off your registration by June 1st! #desmoid #DTRF

✨ More than two years of advocacy by the DTRF led to the approval by the Center for Disease Control (CDC) of ICD-10 codes specific to the diagnosis of desmoid tumor, which also identify tumor location. Learn more: l8r.it/TQ84 #DTRF #desmoid

The DTRF is proud to partner with @PeerView & @SARCtrials for a live/virtual symposium on #desmoid tumors during the 2025 #SARC meeting! 📅 May 30 | ⏰ 11:30 AM CDT | 📍Chicago (and virtually) 🔬 Topic: GSIs & Patient-centric Frameworks 🔗 Register: bit.ly/DT25-T

🎟️ Register to attend the DTRF Int'l Desmoid Tumor Research Workshop in-person or virtually here: donate.dtrf.org/TWW2025. ✨ Use the promo code TWWCHICAGO20 for 20% off your registration by June 1st! #desmoid #DTRF

🎟️ Register for the "Together We Will" Weekend from Sept. 12-13 here: donate.dtrf.org/TWW2025. Learn more details about the Weekend and the DTRF's hotel block on the registration page. Use the promo code TWWCHICAGO20 for 20% off your registration by June 1st! #desmoid #DTRF

💻 Want the latest in #desmoid tumor-related news? Subscribe today to receive our monthly Clinicians & Researchers eNewsletter: l8r.it/CKgI #DesmoidTumor #DTRF

📣 #Desmoid tumors are non-metastasizing, and they are NOT benign. They're classified by the World Health Organization (WHO) as “intermediate (locally aggressive)” soft tissue tumors. Learn more: l8r.it/gF6X #SpreadTheWord #DTRF #Desmoidtumors

📣 Call for abstracts to present in person at the DTRF Int’l Desmoid Tumor Research Workshop, Friday, 9/12/25, in Chicago, IL. Abstracts should be emailed to [email protected]. Submission deadline is 5/5/2025. 🔗 dtrf.org/international-… #DTRF #desmoid

✨ The DTRF is excited to welcome Lisa Gray to its Board of Directors. Lisa is currently serving as Assistant Director of Development at Orchard Lake Schools. 🔗 Learn more: dtrf.org/about-dtrf/boa… #DTRF #desmoid

The DTRF hosts two Scientific and Medical Advisory Board meetings per year. We are grateful for the expertise and guidance this team of experts has provided the Foundation over the years. 🔗 dtrf.org/about-dtrf/adv… #DTRF #desmoid