Cure MAPT FTD
@CureMaptFtd
We raise awareness of the MAPT genetic mutation causing FTD, assist a global network of MAPT families, and advocate for trials that will lead to a cure
When a stranger recognized signs of dementia that doctors missed, Linde Jacobs’ family finally got answers. After losing her mom to genetic FTD, Linde turned her grief into advocacy, working to raise awareness, support research, and ensure others don’t face the same…
Many who have heard my story, are profoundly impacted by the letter I received from an inmate being the first to acknowledge my mom’s dementia, before any physician. After 7 years, I was finally able to give the “Angie” in the letter, the proper thanks. m.youtube.com/watch?v=cAExIi…
The Tau Global 2025 Lived Experience Panel, featuring Paul, Beth & Linde (living with PSP, CBD & FTD family history), deeply moved 500+ researchers. “It touched my heart,” said Dr. Min, a CurePSP grantee. It was a powerful connection that we’ll keep fostering. ⭐
Thank you @CurePSP for all that you do to support the families of those devastated by PSP and CBS. Your fight for answers to tauopathies will surely get us to the finish line!
Happy May! It’s CurePSP Awareness Month 🌟 Stay tuned for inspiring stories, vital research updates, ways to advocate and moments to connect as we turn hope into progress together. We look forward to sharing more. ❤️ Click here to learn more: psp.org/month-of-aware…
We are so lucky to be apart of Richard’s legacy….He lives on in the work he continues to fund and will be instrumental in the cures that are found for Tauopathies. Thank you @RCFNeuro for continuing Richard’s work!
This #PSPAwarenessMonth, we remember our founder Richard Rainwater, who was driven by his experience with #PSP to expand his philanthropic efforts to include research into primary tauopathies. Explore his story: bit.ly/42F57w8
This #PSPAwarenessMonth, we remember our founder Richard Rainwater, who was driven by his experience with #PSP to expand his philanthropic efforts to include research into primary tauopathies. Explore his story: bit.ly/42F57w8
Was an absolute honor to share the stages with other warriors impacted by Tau. Our stories are stronger when they are shared together! Thank you @alzassociation, @CurePSP and @RCFNeuro for hearing the patients! #endftd #tau2025
Thank you to Beth, Paul and @LindeLee912797 for bravely sharing their stories during our Lived Experience Panel at #GlobalTau2025. Panels like these are essential to scientific progress, rooting research in real lives. Grateful to PSPA and our partners for making this possible.
Very excited to attend and connect with everyone at the @AFTDHope Education Conference next week!
The AFTD 2025 Education Conference is just days away! If you are attending in person, please be sure to visit our sponsors Prevail Therapeutics, @AlectorTx, @AviadoBio, @Passage_Bio, Denali Therapeutics, Takeda, @VigilNeuro, as well as exhibitors The Bluefield Project to Cure…
The AFTD 2025 Education Conference is just days away! If you are attending in person, please be sure to visit our sponsors Prevail Therapeutics, @AlectorTx, @AviadoBio, @Passage_Bio, Denali Therapeutics, Takeda, @VigilNeuro, as well as exhibitors The Bluefield Project to Cure…
Starting day 1 at #Tau2025 with the @alzassociation, @CurePSP and @RCFNeuro. Come see us at poster #37 to learn more about the work we are doing at Cure MAPT FTD!
Thank you @jsirven for giving the time and space for this incredibly meaningful conversation and for your investment into telling the patient story!
Had an amazing time joining @DrNeuroChic for an interview about the science behind genetic form of FTD. Always amazing to learn further about the work being done in the research labs and how hard our futures are being fought for by individuals like Dr Melissa Murray and her team.
Had an amazing time joining @DrNeuroChic for an interview about the science behind genetic form of FTD. Always amazing to learn further about the work being done in the research labs and how hard our futures are being fought for by individuals like Dr Melissa Murray and her team.
Had the pleasure of joining the inspiring Linde Lee Jacobs from @CureMaptFtd for the insightful @NPRHealth weekly talk program "What's health got to do with it?" hosted by @jsirven Listen in 👂 👇 👇 👇"Brains on the Brink" with a moving conversation on resilience as she and…
ICYMI: @WJCTNews @FCConair — Brains on Brink! 🧠 Hear @lindejlee’s powerful story, + explore The Ageless Brain w/ @DrDaleBredesen @cureMapftd & @EndFTDregistry @heatherschatz @MayoClinicNeuro @DrNeuroChic @AANmember @asuhealth @MayoClinicNeuro Listen👇 news.wjct.org/show/whats-hea…
Excited to listen in on this episode!
Join us on 4/12 at 4 PM ET on @WJCTNews @FCConair for "Brain on the Brink"! Hear @lindejlee's inspiring story & explore "The Ageless Brain" with @DrDaleBredesen + Updates from @cureMapftd & @EndFTDregistry @heatherschatz @MayoClinicNeuro @DrNeuroChic @AANmember @asuhealth
We had the absolute pleasure of hosting Linde Jacobs from @CureMaptFtd for our Friday morning Neuroscience seminar. She gave a beautiful account of her family's fight against #FTD. Incredible patient advocate with such words of wisdom, " Advances in one avenue of FTD has the…
On #RareDiseaseDay, we remember our founder, Richard Rainwater, whose rare neurodegenerative disease diagnosis inspired the creation of our Medical Research Program. Learn about our work to find cures for tauopathies. rainwatercharitablefoundation.org/our-founder-hi…
Applications for the FTD Clinical Research Learning Institute close this Friday, February 7th. Click the link in our bio to complete the application and become an FTD CRLI Research Ambassador!
Join us along with @RCFNeuro and @CurePSP for #Tau2025, Apr. 24-25 in London or online! Be a part of the conversation as leading experts work to address the future of tau research. Register now: alz.org/Tau
Amazing to see the incredible work of @bess_frost being awarded a Rainwater Prize. Someone so deserving of the highest accolades for her work in neurodegenerationd, but also as a person whose heart is truly vested in making a difference. Thank you @RCFNeuro!
It’s an honor to be awarded the @RCFNeuro 2025 Innovative Early-Career Scientist award! My team and I are excited to continue pushing the envelope to unravel mechanisms underlying tau toxicity and to translate our discoveries into therapeutic strategies to combat tauopathies.
An incredible launch year for @CureMAPTFTD! We have accomplished so much in 1 year, and are rolling into a new year with even larger plans in sight! Can’t wait to see all that 2025 brings to this organization! canva.com/design/DAGZ8K8…
