CURE Epilepsy

@CureEpilepsy

CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 18 countries to date.

Chicago, IL

Joined March 2011

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19KFollowers

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CURE Epilepsy@CureEpilepsy · Apr 21

Our community makes it possible to unlock the doors holding back progress. We find and fund innovative scientists and projects - ones looking beyond the status quo and rethink what is possible in the world of epilepsy research. (Video made possible by Whitten-Newman Foundation.)

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CURE Epilepsy@CureEpilepsy · Jun 27

Researchers at St. Jude used CURE Epilepsy-funded support to create the first organoid model of rare UBA5 encephalopathy. Boosting a partially functional gene reversed effects—hinting at a potential therapy. Huge step for rare epilepsy. 🔗 Learn more: bit.ly/3TE8MF1

CureEpilepsy's tweet card. Scientists at St. Jude Children’s Research Hospital developed a cortical organoid model for UBA5-associated encephalopathy, revealing a new way to possibly address developmental defects.

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CURE Epilepsy@CureEpilepsy · Jun 17

Mark your calendars! @PAMEawareness brings research, policy & lived experience together to expand access to #seizure alerting devices. Hear key findings from a national survey & how they’re shaping care guidelines. Don’t miss it! 🔗 bit.ly/449UQYx #PAMEwebinar #epilepsy

CureEpilepsy's tweet image. Mark your calendars! @PAMEawareness brings research, policy &amp; lived experience together to expand access to #seizure alerting devices. Hear key findings from a national survey &amp; how they’re shaping care guidelines.

Don’t miss it!
🔗 bit.ly/449UQYx
#PAMEwebinar #epilepsy

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CURE Epilepsy@CureEpilepsy · Jun 3

🔬 A promising new #biomarker may enhance presurgical evaluations for children with drug-resistant #epilepsy—helping clinicians better localize #seizures and improve surgical outcomes. 🔗 Read more: bit.ly/3Hl9N26 #epilepsyresearch #drugresistantepilepsy

CureEpilepsy's tweet card. In a large cohort of children with drug-resistant epilepsy, researchers showed that "fast ripples" are the best biomarkers to predict surgical outcomes, but they can be seen in only 43% of patients.

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CURE Epilepsy@CureEpilepsy · Jul 24

July epilepsy research news: 🤰High blood pressure in pregnancy linked to increased risk of seizure in children: bit.ly/4kF0yHT 🧬Comprehensive Study Maps Genetic Mutations in SLC13A5 Linked to Epilepsy: bit.ly/4lXm8bF Subscribe today: bit.ly/4lzKjxf

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CURE Epilepsy@CureEpilepsy · Jul 23

New research links high blood pressure during #pregnancy to an increased risk of #seizures in children. Maternal health may play a critical role in long-term #neurological outcomes. 🔗 Read more: bit.ly/4kF0yHT #EpilepsyResearch #MaternalHealth #SeizurePrevention

CureEpilepsy's tweet card. A new study has revealed a significant association between high blood pressure during pregnancy (gestational hypertension) and an increased risk of seizures in children.

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CURE Epilepsy@CureEpilepsy · Jul 18

Since 1950, @NIH_NINDS has led breakthroughs in brain science. CURE Epilepsy is incredibly grateful for the progress toward treatments and cures that their funding helps drive. Here's to continued discoveries! #NINDS #epilepsyresearch #neurology #research #stroke

CureEpilepsy's tweet image. Since 1950, @NIH_NINDS has led breakthroughs in brain science. CURE Epilepsy is incredibly grateful for the progress toward treatments and cures that their funding helps drive. Here's to continued discoveries! #NINDS #epilepsyresearch #neurology #research #stroke

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CURE Epilepsy@CureEpilepsy · Jul 16

In this Epilepsy Explained video, Dr. Perry breaks down what #MEG is, how it works, and why it matters for people living with #epilepsy. He answers some of the most frequently asked questions about its #clinical use and potential benefits. 🔗 Learn more: bit.ly/3GvMWRr

CureEpilepsy's tweet card. Dr. M Scott Perry, Head of Neurosciences at the Jane and John Justin Institute for Mind Health at Cook Children’s Hospital, answers your questions about MEG, or magnetoencephalography.

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CURE Epilepsy@CureEpilepsy · Jul 1

Brain #insulin resistance may link #Alzheimer’s and #epilepsy — new research supports the "type 3 diabetes" hypothesis and its role in both memory loss and #seizures. A promising step toward better understanding and #treatment. 🧠✨ Learn more: bit.ly/44I1ypW

CureEpilepsy's tweet card. New research has shown that the process of insulin resistance in the brain affects both Alzheimer's disease and epilepsy and may be a linking factor between the two diseases.

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CURE Epilepsy Retweeted

UCLA Neurology@UCLANeurology · Jun 24

In a video with @CureEpilepsy, Dr. John Stern answers questions and discusses the use of #epilepsy rescue medications. Be sure to click below to watch the video! 👇 youtube.com/watch?si=x2SxW…

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CURE Epilepsy@CureEpilepsy · Jun 18

💊 This month on Epilepsy Explained, Dr. John Stern of @UCLA breaks down the vital role of rescue medications in seizure action plans. Learn how these treatments can make a difference when seconds matter. #EpilepsyAwareness #Neurology 🔗 Learn more: bit.ly/3G3kVQQ

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CURE Epilepsy Retweeted

Ingo Helbig@IngoHelbig · Jun 11

Out of sync – HCN2, epilepsy, and the h-current current | Beyond the Ion Channel ...we just published our blog post on the delineation of HCN2 as a novel epilepsy gene. epilepsygenetics.blog/2025/06/11/out…

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CURE Epilepsy@CureEpilepsy · Jun 11

👏 Congrats to our latest Rare Epilepsy Partnership Award & Catalyst Award grantees! Their commitment to innovation is accelerating progress toward a future without epilepsy. 🔗 Read more: bit.ly/4kAdj7i #EpilepsyResearch #RareEpilepsy #CatalystAward

CureEpilepsy's tweet image. 👏 Congrats to our latest Rare Epilepsy Partnership Award &amp; Catalyst Award grantees! Their commitment to innovation is accelerating progress toward a future without epilepsy.

🔗 Read more: bit.ly/4kAdj7i

#EpilepsyResearch #RareEpilepsy #CatalystAward

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CURE Epilepsy@CureEpilepsy · Jun 10

Every one of these names is why we must fund the search for a cure!

UUCB US@UCBUSA · Jun 10

Watch to learn how Channing, a @CureEpilepsy champion, honors those who have fought or are fighting against epilepsy. How do you honor epilepsy warriors?

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CURE Epilepsy Retweeted

UCB US@UCBUSA · Jun 10

Watch to learn how Channing, a @CureEpilepsy champion, honors those who have fought or are fighting against epilepsy. How do you honor epilepsy warriors?

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CURE Epilepsy@CureEpilepsy · May 29

New study links common #genetic variants to drug-resistant #focal #epilepsy. Findings could help predict treatment resistance earlier & personalize care. 🧠🔬 🔗 Read more: bit.ly/3Fo1r9i

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CURE Epilepsy@CureEpilepsy · May 23

Eat, drink, dance, and support epilepsy research! 💜 Join us Sept 20 for Night of Discovery in Chicago for breakthrough science, inspiring stories & a night to remember. 🕕 6–10:30PM | 📍 Fairmont Chicago | Save the date: bit.ly/4dr05ag #NightOfDiscovery #ChicagoEvents

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CURE Epilepsy@CureEpilepsy · May 22

In labs across the nation, researchers are having to make difficult decisions about scaling down their projects due to federal funding cuts and changes to how the NIH awards grants. 🎥 Learn more from our CEO, Beth Dean, good friend, Jack Sommers, and grantee, Dr. Avtar Roopra.👇

MMore Perfect Union@MorePerfectUS · May 19

NEW: Researchers recently made a breakthrough that could help cure epilepsy — but Trump's science cuts could completely eliminate this work and jeopardize everything.

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CURE Epilepsy@CureEpilepsy · May 21

NIH funding cuts threaten a breakthrough in SYNGAP1 research at Johns Hopkins University. “Cuts put everything at risk… and cast a dark cloud over the entire SYNGAP1 community,” says Dr. Huganir. 🔗 bit.ly/45gTUDA #raredisease #SYNGAP1 #researchfunding

CureEpilepsy's tweet card. Hopkins neuroscientist Richard Huganir is close to finding a potential life-changing treatment for kids with SYNGAP1-related disorders, but cuts to federal funding could delay or halt the progress

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