Clusterbusters, Inc.
@Cluster_buster
Non-profit dedicated to improving the quality of life of those with cluster headache through research, education and advocacy. Tweets by volunteers & Bob Wold.
Care Partner Safe Room Host- Julia Gibson Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com
Have you been misdiagnosed with migraine or had a delayed diagnosis because you have migraine? Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com
Joe Mckay - Board Member Episodic cluster headache-23 years New Jersey Duties include: Policy advocacy, patient speaker Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com
This year Dr. Schindler will share via a pre-recorded message about her latest research project with our community. Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com
Pediatric Cluster Headache Were you under the age of 18 when you got your first cluster attack? Let us know in the comments! Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com
Finding Purpose Through Pain: Stefan’s Story Cluster Headache Association of Austria 2025 Migraine & Headache International Patient Advocacy Summit, Stefan Kohlweg shares personal experience living with cluster headache often called the “suicide headache” youtube.com/watch?v=OxoTZL…
Introducing our Team: Bob Wold - Founder/Executive Director Episodic cluster headache - 40+ years Lombard, Illinois Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com
Bill and Jeannie will provide a patient perspective together. We appreciate their willingness to share their stories! Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com
Adam Kaney, has been working with Dr. Mark Burish on understanding the data from our 2023 CH Medication & Psychedelic Use Survey. Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com
Have you had a tooth extracted only to find out nothing was wrong with the tooth? Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com
Introducing our Team: Anna Williams -VP Duties include: US Conference Planning Committee, ClusterBuddies Coordinator, 5k Coordinator Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com
Perspective matters and this year we are honored to have the daughter of someone who experiences cluster headache to give their picture of this disease. Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th Register here: l8r.it/HDhk
Have you wondered how NIH funding affects research for cluster headache? Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: l8r.it/nEB7 #Clusterbusters2025
Accommodations: Room Block Closes on Tuesday, August 19, 2025 at 11:59pm CT Airport shuttle from DFW Complimentary hot breakfast and evening happy hour Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th Register here: cbdallas2025.planningpod.com
Introducing our Team: Ainslie Course - President Episodic Cluster Headache 40+ years Glasgow, Scotland Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com
Apply for Fall Virtual Headache on the Hill (Sept 30): Join advocates from across the country to share your story with Congress—all from the comfort of your own home. No experience needed Applications due July 15th. forms.allianceforheadacheadvocacy.org/a/fall-2025-vi…
This will be an opportunity to learn more about oxygen use including tips and tricks to optimize its effectiveness. Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com
A time honored tradition at Clusterbusters in person conferences is the Silent Auction and Raffle. Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com
Rev. Dr. Tammy Isaac will present: The Grief Within the Ache: Pain Led, Grief Followed Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com
Dr. Shuhan Zhu is a neurologist with a subspeciality in headache disorders. She works at at BWH/Faulkner Headache Center. Challenges in Diagnosis of Cluster Headache Clusterbusters 20th Annual US Patient Conference More information and register here: l8r.it/IneW
