Cerebra Network

Who is the Cerebra Research Network? We are a unique academic team that integrates knowledge across four leading institutions, focusing on children with rare and complex syndromes. Click this link to learn more: cerebranetwork.com

Sharing this @centre_ub webinar which will be starting in less than two hours and features Dr @MarieDunnion revealing insights into our new upcoming #podcast series: 'From Research to Reality in #RareSyndromes' - watch this space for episodes being released from next month!

In support of #RareDiseaseDay, the Cerebra Network team @unibirmingham have popped on some @MedicsForRare stripy socks and displayed their posters to raise awareness for #raredisease - did you know that 3.5 million people in the UK live with a #RareCondition? #ShowYourStripes

*Discussion Group Opportunity* For those thinking ahead to #2025, you may be interested in taking part in this #OnlineDiscussion group in January. Contact details for more information are contained in the post. #RareGeneticSyndromes #FocusGroups #PPI #CerebraNetwork #Podcast

❓ 'Are the resources you offer free?' 'Where can I access these resources?' 🙋 We are pleased to announce we have revamped our website. You can now find all FREE #CerebraNetwork resources in one place! Please follow this link to access our website: cerebranetwork.com

🤔 What is the #LaddersProject? A project developed in collaboration with parents/carers of autistic children, to help reduce anxiety for children during frequently encountered activities. 🌐 To learn more about the project, please follow this link: laddersproject.co.uk/ladders-testim…

Identifying #Pain in children with limited communication can be challenging.  To download the #CerebraBeWellChecklist, please click here: cerebra.org.uk/download/be-we… To watch Dr. Kelly Wade explain the role of pain in affecting behaviour, please click here: youtube.com/watch?v=chisij…

On #WorldMentalHealthDay, a reminder to parents caring for children with complex needs: your well-being matters too.  Take the support you need—you don't have to do it alone. Here are some helpful resources. 💙  #MentalHealthMatters

Parenting is incredibly rewarding but can also be challenging at times when supporting a child with anxiety.  Please follow this link to download the #BeWellChecklist: cerebra.org.uk/download/be-we… To watch the short video on anxiety and behaviour click here: youtube.com/watch?v=y_w4LV…

Researchers @UniofOxford @UniOfSurrey @uclare are looking for volunteers (4-9 years) with #DownSyndrome #FragileXSyndrome #WilliamsSyndrome to join a study to better understand numeracy education. Intro video: youtube.com/watch?v=XRdV50…. Contact [email protected] with questions.

FREE @CerebraCharity Sleep Webinar on the 26th September (12:30 - 2pm): eventbrite.co.uk/e/understandin… In this webinar, we will consider what #sleep is, why sleep problems occur more often in children with #GeneticSyndromes, and how to improve sleep.

❓ Are you a person with a genetic syndrome? ❓ We need your help to improve a free teacher training resource focused on supporting children with genetic syndromes and intellectual disabilities in schools. Interested? Email Katherine for more details at [email protected].

Today is SATB2-associated syndrome Awareness Day. You can learn more about our research from the YouTube video ‘Behaviours in SATB2-Associated Syndrome’ : youtube.com/watch?v=DDwM7T… You can also learn more about SATB-2 on the SATB2 Gene Trust UK website: satb2gene.org.uk/about/about-sa…

Last weekend, @CerebraNetwork attended/presented at the @Kleefstrasyndro Family Conference in Cheshire. These pics show one of the Network's Leads, Prof Caroline Richards (Clinical Psychologist, @RichardsLabUoB) speaking to families about understanding & reducing #SleepProblems.

An excellent presentation from last week's @CerebraNetwork @AstonUniversity event on improving outcomes for people with #LearningDisabilities. Here is @Drhayleytrower introducing the 'Be-Well Checklist: Thinking Differently About #BehavioursThatChallenge': cerebra.org.uk/get-advice-sup…

Following an impactful June, Kiran & @MarieDunnion once again enjoyed sharing a wealth of @CerebraNetwork resources at this @AstonUniversity event on improving outcomes for people with #LearningDisabilities. Including @CerebraCharity Parent Carer guides & findresources.co.uk

An excellent research presentation as part of our @CerebraNetwork @AstonUniversity event on improving outcomes for people with #LearningDisabilities. Here's Jess Hughes presenting @Autistica The Ladders Project (laddersproject.co.uk): Anxiety Strategies for #AutisticChildren.

Today's @CerebraNetwork @AstonUniversity event has just started: 'Working together to improve outcomes for people with #LearningDisabilities.' Here's @Waite_Aston giving an overview of Aston/Cerebra Network #LearningDisabilityResearch to #HealthService clinicians & practitioners.

July 3rd is Rubinstein-Taybi Syndrome (RTS) awareness day. Please follow this link to learn more about our research and key facts: findresources.co.uk/the-syndromes/…

A huge thank you to @CdLSUKIreland for inviting us today to the the #CdLSFamilyFunDay at the #WestMidlandsCircusCentre. We had an amazing time getting to know families and children as well as having fun with silks and hoops, crafting, and a lovely picnic!

We have developed a range of resources to improve understanding of the needs of children with rare genetic syndromes, intellectual disability, and other neurodevelopmental conditions. Please follow our website to access all our resources: cerebranetwork.com