COVID-19 Longhauler Advocacy Project

@C19LH_Advocacy

A U.S. based grassroots, patient-led, all-volunteer c3 nonprofit org advancing the understanding of & expediting solutions to #LongCOVID #LongCOVIDAwarenessDay

United States

Joined November 2020

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9KFollowers

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COVID-19 Longhauler Advocacy Project@C19LH_Advocacy · Mar 25

To the millions we serve, A statement from our founder on the devastating closure of the @HHSGov Office for #LongCOVID Research & Practice. Within, find an action network to easily write @SecKennedy @POTUS & Congress & a volunteer form. longhauler-advocacy.org/so/ebPNEWBYA?l…

C19LH_Advocacy's tweet card. To the millions we serve, Today it is with great sorrow that I announce by direction of the Trump administration, The Office for Long COVID Research and Practice has been ordered closed. The Office...

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COVID-19 Longhauler Advocacy Project@C19LH_Advocacy · May 22

Extremly bad news today folks. msnbc.com/opinion/msnbc-… The “One Big Beautiful Bill,” passed by the U.S. House of Representatives on May 22, 2025, includes significant reductions to major social programs: Medicare •$500 billion in cuts with $45 billion in cuts in 2026 and $490…

C19LH_Advocacy's tweet card. If that sounds like hyperbole, it’s not.

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COVID-19 Longhauler Advocacy Project@C19LH_Advocacy · Jul 4

Topics you want to know about C19LAP is working on updating and improving our newsletter series. We want to hear from you, what topics you would be interested in getting information and updates on. We welcome all ideas, but caution that capacity is a significant issue for us at…

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COVID-19 Longhauler Advocacy Project@C19LH_Advocacy · Jun 24

Many of us have conditions that do not allow us to regulate our body temperature. Many of us are on medications, for example, SSRI’s that inhibit your ability to regulate your body temperature. Here are some key signals you or a loved one may be facing heat exhaustion or heat…

C19LH_Advocacy's tweet image. Many of us have conditions that do not allow us to regulate our body temperature. Many of us are on medications, for example, SSRI’s that inhibit your ability to regulate your body temperature.

Here are some key signals you or a loved one may be facing heat exhaustion or heat…

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COVID-19 Longhauler Advocacy Project@C19LH_Advocacy · Jun 17

In a major victory for public health — led by APHA — a federal judge ruled on Monday that some of the NIH grant terminations by the Trump administration are "void and illegal." statnews.com/2025/06/16/nih… thehill.com/policy/healthc… C19LAP is a proud member of the APHA.

C19LH_Advocacy's tweet card. A federal judge ruled that some of the grant terminations by the National Institutes of Health on DEI grounds are “void and illegal.”

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COVID-19 Longhauler Advocacy Project@C19LH_Advocacy · May 30

We love to see colleges and schools that care about heir students, staff, and public health! @UCLA

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COVID-19 Longhauler Advocacy Project@C19LH_Advocacy · May 14

In the hearing, Secretary Kennedy stated that he has a son “dramatically affected by Long COVID.” thesicktimes.org/2025/05/14/sec…

C19LH_Advocacy's tweet card. Long COVID was at the top of legislators’ priority list during today’s Senate Health, Education, Labor, and Pensions (HELP) Committee hearing with Health Secretary Robert F. Kennedy Jr. Senator Bill...

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COVID-19 Longhauler Advocacy Project@C19LH_Advocacy · May 14

#COVID before or during pregnancy may confer 2 to 3 times the risk of miscarriage. cidrap.umn.edu/covid-19/covid…

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COVID-19 Longhauler Advocacy Project@C19LH_Advocacy · May 9

URGENT ACTION NEEDED FROM MINNESOTANS! MN is about to lose its Long COVID program, one of the best, w/ the best staff in the country and globally. The legislator seems set on defunding this program. The legislative session ends May 19th, and this could be voted on sooner. WE…

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