Ataxia and Me CIO 1184030
@Ataxia_and_Me
#Ataxia is a #raredisease affecting #Balance #Speech and #Coordination #Patients Helping Patients #MovementDisorder #Health #Medical #pharma
Checkout our #SocialMedia channels and our website ataxia-and-me.org from #Ataxia / #Raredisease #Charity based in #Wales with a #Global Following #Patient #Pharma #StrongerTogether for @rarediseaseday
Welsh research is helping protect vulnerable babies from RSV, with findings from the HARMONIE trial used as evidence in this decision from @WelshGovernment healthandcareresearchwales.org/withoutresearc…
Babies born prematurely will be offered protection against respiratory syncytial virus (RSV) with a long-acting antibody medicine.👩🍼 This follows the launch of the first ever RSV vaccine for pregnant women and adults aged 75 to 79 last year. ✅ 👇 gov.wales/nhs-wales-offe…
What does our #Brain #Logo show ? It shows the #Cerebellum (the faulty part)Checkout ataxia-and-me.org and #SocialMedia channels @ataxia_and_me to find out more. #StrongerTogether #Cerebellum #PatientsHelpingPatients, #WorldBrainDay
Cerebral small vessel disease (cSVD) can cause stroke and dementia, but has no cure. With @UKDRI, we're supporting a clinical study at @imperialcollege to test whether XBD173, a shelved anxiety drug, can reduce brain damage in people with cSVD.
For those in the U.K. with children who are on summer break, hopefully this may help 👇🏻
Are you #Ataxia aware ? Be aware of this #RareDisease #PatientAdvocacy #Health #Medical #PatientEngagement #Awareness #Postcards #StrongerTogether #Donate at localgiving.org/fundraising/At…
Are you #Ataxia aware ? Be aware of this #RareDisease #PatientAdvocacy #Health #Medical #PatientEngagement #Awareness #Postcards #StrongerTogether #Donate at localgiving.org/fundraising/At…
*Nominate now to BOOST to £2000 * @benefactgroup is giving to charities #Atacsia #Ataxia #Charity #Cymru / #Wales (28th July Draw) ✅ Scan the QR code or visit movementforgood.com/#nominateAChar… ✅ Submit your nomination—it only takes a minute!
*Nominate now to BOOST to £2000 * @benefactgroup is giving to charities #Atacsia #Ataxia #Charity #Cymru / #Wales (28th July Draw) ✅ Scan the QR code or visit movementforgood.com/#nominateAChar… ✅ Submit your nomination—it only takes a minute!
Its #FriYAY🍔 order a #takeaway and Make it count! 🍕 Order via @GiveasyouLive & they’ll donate to #Atacsia / #Ataxia #Charity —at no extra cost! Order now giveasyoulive.com/join/atacsiaaf…
Please "#BEE" kind and *Nominate now to BOOST to £2000 * @benefactgroup to charities #Atacsia #Ataxia #Charity #Cymru / #Wales (28th July Draw) ✅ Scan the QR code or visit movementforgood.com/#nominateAChar… ✅ Submit your nomination—it only takes a minute!
Planning a #RareDisease trial? It’s all about balancing cost, quality, and patient-first innovation. Our checklist breaks down 9 practical tips to help you do just that—with insights for sponsors, sites, and more: bit.ly/4hJMTyh #PremierResearch #ClinicalTrials
Are you #Ataxia aware ? Be aware of this #RareDisease #PatientAdvocacy #Health #Medical #PatientEngagement #Awareness #Postcards #StrongerTogether #Donate at localgiving.org/fundraising/At…
Looking forward to the feedback from @WalesGenePark at #HelloEXPO2025 #Raredisease #Genomics #DNA #PatientEducation 🏴🏴🏴
Please "#BEE" kind on #WorldBrainDay *Nominate now to BOOST to £2000 * @benefactgroup to charities #Atacsia #Ataxia #Charity #Cymru / #Wales (28th July Draw) ✅ Scan the QR code or visit movementforgood.com/#nominateAChar… ✅ Submit your nomination
July 22 is #WorldBrainDay! At Tegra Medical, we’re proud to support advances in brain health by manufacturing precision devices used in neurological procedures—from brain surgery to neurostimulation. 🧠 Discover more at bit.ly/4nV8zLK.
Proposed first-tier genetic testing approach for common genetic #ataxias based on regional prevalence rates. Relevant approach in underserved regions & in developed countries where health systems limit access to genetic testing …mentdisorders.onlinelibrary.wiley.com/doi/10.1002/md… @movedisorder @MDJ_Journal
Sometimes I have to remind myself that “living life with stage 4 cancer” is about LIVING LIFE! Last week I took Tommy on a little tour visiting family & friends then had a few days in the Peak District Great adventure #Stage4 #stage4cancer #LivingLifeWithCancer
Are you #Ataxia aware ? Be aware of this #RareDisease #PatientAdvocacy #Health #Medical #PatientEngagement #Awareness #Postcards #StrongerTogether #Donate at localgiving.org/fundraising/At…
