Albinism Fellowship
@AlbinismUK
Providing information, advice and support for people with Albinism and their families
Are 2 people with albinism together bad luck? Some people think so.. @NOAHAlbinism @RNIB instagram.com/reel/DLfeBYqsZ…
Lack of depth perception explained @Albinism_MythX @RNIB @NystagmusUK @NOAHAlbinism instagram.com/reel/DLSzRAssh…
Kristina & Dr Jay explain what someone with albinism may see @RNIB @NystagmusUK @NOAHAlbinism instagram.com/reel/DLQMrU9M6…
Genetics is complicated- Dr Jay will explain that if you have albinism it is not likely all your kids will instagram.com/reel/DLPDDgBMe…
What one thing I want you to know about albinism Dr Jay & Kristina #IAAD2025 #ProtectOurSkin #PreserveOurLives #AlbinismAwareness #albinism @NOAHAlbinism @GeneticAll_UK @NystagmusUK @unisouthampton instagram.com/reel/DK1h14lMt…
Great video with young people with albinism talking honestly about what it’s like being a PWA in 2025 @LOOK_UK #iaad2025 #AlbinismDay #albinism #nystagmus #Disability youtu.be/LQbFmw2S8K8?fe…
I am not contagious- I promise! #albinism #Genetics #nysytagmus #ophthalmology @GeneticAll_UK @Albinism_MythX @NOAHAlbinism @RNIB @NystagmusUK @MariyaMoosajee instagram.com/reel/DKwIQY6MQ…
WE ARE BACK ON X in time for International Albinism Awareness day! Check out our latest project with Paediatric Consultant ophthalmologist Jay Self @Albinism_MythX instagram.com/reel/DKOs1n9sm… instagram.com/reel/DKKpLCQII…
If you're looking for a book that helps explain #Nystagmus to a child aged 7+ then look no further than 'Can I tell you about Nystagmus?' by Nadine Neckles, herself a nystagmus mum. Nadine's wonderful book is now back in stock in our online shop: nystagmusnetwork.myshopify.com/collections/ch…
Next week (4-7 Nov.) we will hold the 5EDA International #Albinism meeting ONLINE, organized by #Genespoir and #AlbinismEurope. There are talks planned for researchers, for non-scientists and for non-experts health care personnel. All info available from 5EDA albinism web site.
In this week's Featured Thursday we caught up with Karina Lang from Winchester Goalball Club (@WinchGoalball) who recently supported @AlbinismUK to deliver their annual Albinism Fellowship Conference! #GoalballFamily 🔵💙 ow.ly/DhhO50BXhl4
Last Saturday @AlbinismUK held #AFConference2020, so we thought it would be a great time to look at Goalball UK's involvement in the conferences over the years! #GoalballFamily 🔵💙 Follow the link below to check it out! ow.ly/yUJb50BYjMe
Enjoying our final session , which is for Adults with Albinism. Talking about work, managing posture when working with low vision & hobbies. #AFConference2020
Children & teens with #Albinism session now. They’re telling each other about their favourite hobbies & the technology they use at school.
Mike Hughes reminds us that under case law on welfare benefits, seeing is considered a bodily function! #Albinism #SightLoss #AFConference2020
We’re in our PIP & DLA session of the Albinism Fellowship virtual conference. Speaker is Mike Hughes, expert in welfare & benefits for people with sight loss. #AFConference2020
We’re now in the schools section of our conference with QTVI Alison Blackman. Breakout sessions are nursery, primary & secondary. #AFConference2020
AGM complete & we’re into the parents sessions #AFConference2020
Time for our AGM & parent discussion groups: new parents, returning parents & “Breaking Down Barriers” for parents of children with Albinism from #BAME community #AFConference2020