Stealthy Jess π¨π¦ π
@AdvancedTweaker
an ex-therapist who's really into data & experiments; personal + science posts only; follow β endorsement
UPDATED - FINAL PROTOCOL. Maxed out Maraviroc dose on Tuesday Jul 15. This is my protocol, staying on indefinitely: - Maraviroc 300mg 2x/day - Truvada 1/day - Raltegravir 400mg 2x/day - Atorvastatin 2.5mg (1/day) I will phase out the Atorvastatin once my spasms stop completelyβ¦
As many of you know, I've been repurposing HIV antiretroviral meds to treat my LC. My energy and baseline have been slowly, consistently improving. For everyone still asking me about my protocol, I put it all in one spot, where I can update as I go along. My current meds:β¦
Pov: You can't keep friends or have meaningful hobbies because you're too exhausted to even have a conversation after faking it through pain at your full-time job and keeping up with dressing/feeding yourself so you can keep going to work.
unpopular opinion: genuine people donβt have many friends.
Oh this is getting attention really fast idk if I have anything else to add... Here's a reddit comment that I feel gives good advice on seeking treatment if anyone is curious. It sucks so bad that when you're sick you also have to perform to be taken seriously!!
Fixed it for youβΌοΈβΌοΈ
Covid-19 cases per million people, 2020 - 2025
The r*(ecovered) word is officially a trigger word for me now. "Recovery" doesn't seem scientifically possible for someone like me based on how my symptoms/drug responses/body have been behaving. Even if I get a hundred Pemgarda infusions or stuff myself with antivirals. Iβ¦
I'd almost rather take that fractalkine inhibitor monoclonal antibody over Pemgarda at this point... π’
Do you live in an apartment or stay in hotels? Got a "oops, outside air can get you" study. Coming out of Beijing University of Technology - taking airborne transmission seriously. They rented 50 rooms of a building. Did some very cool CFD work - then, be still my heart,
#TheAcidTest2? People with Long COVID and ME/CFS, would you want to participate in a study using continuous lactate monitors? The monitor would be similar to the CGMs available now & would be provided free. It would require daily symptom tracking & wearing the sensor for 30β¦
Whenever I see a socially insensitive comment, I just think neurodivergent and let it go. Maybe I'm a bit too forgiving sometimes π
Rio de Janeiro researchers tested 5 statin-based compounds and found that two, 426 and 432, inhibit the SARS-CoV-2 PLpro enzyme with IC50 values near 1 Β΅M, showing promise as non-competitive antivirals for COVID-19. nature.com/articles/s4159β¦
Is anyone else freaked out by their brain fog getting worse? I really am beginning to wonder if itβs actually dementia caused by LC. Instead of being really bad at the beginning and then resolving, mine seems to have gotten worse over time, irrespective of my baseline.
Iβve just learned that Bridget has passed and Iβm heartbroken to see another among us lose their life to this illness. Rest in peace Bridget. π These illnesses are deadly. We need to stop pretending they are not. And when someone says this π, we need to believe them.
I called my mom. I told her I'm afraid I'm going to die. Her response? She hung up. π«#MECFS