Princess, The Tower

“Pain is soul destroying. No patient should have to endure intense pain unnecessarily." #chronicpain #spoonie

“When you’re sick of being sick, you don’t need a pep talk. You just need someone to say, ‘I’m sorry things are so hard right now,’ or ‘It’s perfectly understandable you’re feeling this way.’ If you don’t have such a person—then be that person.” buff.ly/IOUBuo8 #spoonie

“I wish people had more #empathy for anyone who has a #chronicillness of any kind. I wish they knew how much I miss working…socializing…that I would give anything to have the ‘old me’ back… but I'm fighting and doing my best to survive.” buff.ly/tH4r6Ep #ChronicPain

“For many #spoonies, the idea of asking for #support can bring up feelings of guilt or fear of being a burden… The pressure to remain self-sufficient can feel overwhelming.” How to Let Go of Guilt and Embrace #Support with #ChronicIllness buff.ly/JGKPTFR #ChronicPain

“Because the body’s nerves are constantly firing they never get a rest, so when they get triggered by “smaller” things, they will hurt more than a “regular” person.” Please Don't Confuse #ChronicPain With Low Pain Tolerance buff.ly/GOw4yWr #intractablepain #chronicillness

“You have a weighted blanket to help manage your #anxiety… except you regret buying it because it’s basically a giant paperweight when your swollen hands can’t pull it up at night.” Tell Me You're #ChronicallyIll Without Telling Me… buff.ly/lZaOn80 @AChVoice #Memes

“Don’t waste a precious minute feeling like a burden. If we could change our situations, we would. Instead, let’s #advocate for one another… And if the word “burden” somehow weasels its way into our heads, may we replace it with warrior.” buff.ly/r5j9ZEQ #chronicillness

“Allowing unwanted thoughts & feelings to simply be—without engaging in a constant tug-of-war with your mind. This is the essence of acceptance—not an endorsement of suffering but a willingness to coexist with discomfort in service of living.” buff.ly/PlLpLlz #ChronicPain

“Listening to music. It can be so soothing… lay in bed with your eyes closed listening to each word, the notes, melody… It’s hard to keep going sometimes when it feels like nothing is getting better… I’m here with you in the struggle—#YouAreNotAlone.” buff.ly/yNX52b2

“If they suffer from #ChronicPain, they’re in pain all of the time… In my case, I’m never symptom-free. Even on a “good” day…and slowly deteriorate as the day progresses.” 9 Frustrating Things About Being #ChronicallyIll buff.ly/ojeUXWT #ChronicIllness #Spoonie

“If you're struggling, you deserve to make #selfcare a priority… Quiet the voice telling you to do more and be more, and today, whatever you do, let it be enough… Be gentle with yourself. Acknowledge that you're doing the best you can to cope and survive.” #chronicpain #spoonie

“There’s no such thing as doing anything “small” when you have a chronic condition; it’s all a big deal… I stay silent not only because it’s hard to ask for help…but because I don’t want to burden anyone.” buff.ly/q4boUGh #ChronicPain #ChronicIllness #Disability

“We in the #chronicillness community have tried many different ways to explain fatigue, from rechargeable batteries to #spoons… Be patient… if the other person doesn’t reply… with #fatigue it might be hard to think straight to reply.” buff.ly/yHabh7h @bloomingmindxx

“Being in constant pain wears on you… Having no social life, being unable to leave the house, lacking human contact for weeks on end… My house becomes my prison. My pain, the guard preventing me from leaving.” buff.ly/XalQqAa #ChronicPain #ChronicIllness #Flareup 

“‘Are you feeling better yet?’ which show a complete lack of awareness into the nature of #chronicillness. There is no ‘better’. We are sick every single day. There might be good days and bad days, but even the ‘good’ days are marred with suffering.” buff.ly/2vdkdhu

“If I were honest with you about how my body feels when I wake up… you would likely think it’s not possible to feel so battered every single day… Because society doesn’t understand #chronicillness, there is no place for invisible #disease.” buff.ly/QfjDyf1 #chronicpain

“It takes a lot of energy to be in pain all the time… You can’t know what it’s like living with #chronicpain unless you have it, and understanding what it’s like […] dramatically affects how you treat someone who lives with it.” buff.ly/ZVh1ubc @kmitchellauthor #spoonie

“Take breaks when fog sets in… #fibrofog or #fatigue can strike at any time, especially when you’re stressed… Taking care of yourself in the short term will always improve the long term… Don’t feel guilty when something is too difficult.” buff.ly/BLMpE0Y #ChronicPain

"Success is not measured by what you accomplish but by the opposition you have encountered, and the courage with which you have maintaned the struggle against overwhelming odds.” ~ Orison Swett Marden #DisabilityPrideMonth #ChronicPain #ChronicIllness

“I try my best to do what I can and not become consumed by thoughts of what I cannot. Every day, I try to find joy in small pleasures that bring me comfort. And I do sometimes have great moments, beautiful days even—but still—I’m in pain.” buff.ly/3E649PQ @serenebutterfly

“Listening to your body is one of the most important things you can do when you live with #chronicillness… signs of increased #fatigue, dizziness and #pain… Ignoring my body can cause a flare-up of symptoms, so I try and listen to what it’s telling me.” buff.ly/mEXJiiW