ALS Canada

Today, ALS Canada celebrates a monumental advocacy achievement: the Ontario Government's commitment of $13 million over three years in the 2024 Fall Economic Statement to support the Ontario Provincial ALS Program. To the ALS community, thank you. Together, we did this. This…

“One of the reasons why I’m so involved in ALS advocacy is because my grandpa and my dad’s main priority was always protecting and taking care of family. By getting involved in initiatives with the goal of ending or effectively treating ALS, ultimately, I feel I’m helping to…

How is Canada influencing the global fight against ALS? What are some initiatives and meetings shaping the future of ALS research? From international roundtables to national research meetings, the ALS Canada Research Team is driving progress at every level. The July edition of…

We’re proud to share our 2024 Annual Report, United in ALS: Driving Progress Forward. Highlighting the strides we’ve made together, the report is a thank you for helping Canadians affected by ALS today and supporting progress toward #aWorldFreeOfALS. Read it here:…

The start of a fresh mandate following the recent federal election means many opportunities to engage with Members of Parliament and build relationships. ALS Canada is excited to launch a federal letter-writing campaign, “Welcome to Parliament: A Message from Canada’s ALS…

Catch up on ALS Canada’s advocacy efforts during the second quarter of 2025, including reconvening the Parliamentary ALS Caucus, launching a new advocacy resource and driving government recognition of June as ALS Awareness Month. Dive into our latest Advocacy Update to learn…

“ALS can feel incredibly isolating, but I’ve found strength in community. Support groups have connected me with other people who understand. I’ve also found purpose: joining ALS Canada’s Board of Directors and participating in fundraisers like the ALS Canada Revolution Ride.”…

What could Canada do with $50 million to transform ALS research? That bold question set the tone at the National ALS Research Summit, hosted by ALS Canada. Researchers, clinicians, people affected by ALS, and ALS organizations came together in person to envision a national…

ALS Canada is pleased to support the 2025 International Motoneuron Society (IMNS) Meeting, held from July 8 to July 11 in St. John’s, Newfoundland. This global event brings together leading scientists, clinician-investigators, and trainees committed to advancing research in…

Exciting news – we surpassed our goal! 🎉 Thanks to your generosity, we raised more than $2 million for the ALS Canada #WalkToEndALS – an incredible milestone we haven’t hit since 2019. From all of us at ALS Canada, thank you for making this Walk season truly unforgettable 💜.…

“Those two and a half years were the hardest of my life - watching my mom care for my dad, knowing there was nothing we could do but make him smile and cherish every moment. I may have felt powerless watching my dad live with ALS, but by pulling together, we can raise awareness,…

“Increased donations would absolutely allow us to expand our support for cutting-edge science and build long-term capacity across the country. At the same time, we also believe greater public awareness can spark broader engagement, from government, the private sector, and the…

Is it too soon to start reminiscing? 💜 The 2025 ALS Canada #WalkToEndALS brought us together in the most powerful way – to honour the people we’ve loved and lost, support people living with ALS, and take action for change. While in-person Walks may be over, the impact…

☀️ Summer is here, and the temperature is rising! There's no better time to get together with friends and family to fundraise for #aWorldFreeOfALS – register your personal fundraiser today! For fundraising ideas and to set up your fundraiser, visit: bit.ly/44tBuP7.

Unite for ALS Awareness Month 🌟 After being involved with ALS research for over 14 years, Colleen Doyle, Director of Canadian Research at ALS Canada, shares why she’s committed to funding high-quality research and supporting people affected by ALS. This ALS Awareness Month, read…

Last week, ALS Canada participated in the first 2025 meeting of the Parliamentary ALS Caucus—a non-partisan forum uniting MPs and Senators to refocus attention on the urgent priorities of people affected by #ALS. Alongside ALS Community Ambassador Norman MacIsaac, we discussed…

Do you have questions about #ALS research? 🙋 Join us on Wednesday, June 25, at 1:00 pm ET for ALS Research and Clinical Trials 101 Q&A Drop-in, a monthly session where you can have your questions addressed, chat with peers, meet the ALS Canada Research Team, and get access to…

Dr. David Taylor, Chief Scientific Officer at ALS Canada, will be a featured speaker at the upcoming @FightMND Scientific Seminar, addressing the vital need to both champion and challenge the global ALS/MND clinical trial ecosystem. The webinar will be held June 23,10:00 pm ET…

To wrap up a memorable #ALSAwarenessMonth, @BellevilleON’s sign at City Hall, as well as the Bridge Street Bridge, and the Fire Station 1 Memorial will be glowing purple from June 22-29. The lighting is best seen in the evening – if you're in the area, snap a photo and share it…

For #ALSAwarenessMonth and the Hamilton #WalkToEndALS that took place today, Hamilton’s #hamontsign is glowing purple today, June 22. The lighting is best seen in the evening – if you're in the area, snap a photo and share it with us @ALSCanada!

Thank you @RobinLennox for supporting the #WalktoEndALS Hamilton. The Walk to End ALS is more than a fundraiser – it builds community and connects people, demonstrating that we are all part of something bigger. Together we can achieve #aWorldFreeOfALS.